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    #16
    Well I was just being my usual altruistic, compassionate self ๐Ÿ˜‡ I only wanted to help a friend in need.

    As to why no men offered to help, I cannot speak for them...

    Patw Honestly, I hope you're more comfortable now. xx
    โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    โ€‹

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      #17
      Originally posted by Gordan1111 View Post
      I also had to work my way around to it with Dr Google's help. First time I've smiled for a while x
      Your sponsored ads on Google over the next few days should be interesting, Gordan. ๐Ÿคญ๐Ÿคญ xx
      โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      โ€‹

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        #18
        Ellie thanks yes Iโ€™m ok at the minute ๐Ÿ˜‚ gonna see dr tomorrow so have a chat with them , my partners mum is a nurse and has told me to put ice on it , I think sheโ€™s taking the mickey

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          #19
          Originally posted by Patw View Post
          my partners mum is a nurse and has told me to put ice on it
          Be grateful that was her only offer of help... ๐Ÿคฃ๐Ÿคฃ๐Ÿคฃ

          โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          โ€‹

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            #20
            Well, Patw Ive been on sertraline for about 5 years and have never had that problem!!!!
            Mum died with MND in 1979 โ€“ My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.

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              #21
              EvelynMW ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚ I should hope not x

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                #22
                Well now how can I answer. Can't have one without the other. ๐Ÿ˜‚๐Ÿคฃ๐Ÿ˜ƒ
                when i can think of something profound i will update this.

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                  #23
                  Patw It's just over 3 weeks since your first post on the forum and look how far you've come - you should be proud of yourself. I know it's early days and there'll be bad days, as well as good ones, but it's still possible to be ourselves and have a laugh like mates down the pub ๐Ÿ˜Š

                  I'm glad you joined in today's fun and thanks for the laughs.

                  Love Ellie ๐Ÿค—
                  โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  โ€‹

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                    #24
                    Yes Pat.. Thanks for being such a good sport and making us laugh today. ( even if i am far too young and innocent to know what anyones talking about !)

                    I hope you got some relief .. do I need to rephrase that ?๐Ÿ˜‚

                    Love Debbie x

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                      #25
                      Ellie its not been easy ! Itโ€™s a situation I canโ€™t change and the anti depressants have helped a lot for me , apart from this situation but I will make the most of that ๐Ÿ˜‚๐Ÿ˜‚
                      and when we have friends like u too help us thru it , well itโ€™s made a lot easier xxx

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                        #26
                        Hi deb yes Iโ€™m glad u all laughed at my situation ๐Ÿ˜‚๐Ÿ˜‚

                        no relief as it doesnโ€™t happen all the time ๐Ÿ˜‚๐Ÿ˜‚ but when it does it does not go away ๐Ÿคฆโ€โ™‚๏ธ

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                          #27
                          Seriously Pat, I hope you feel better soon x

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                            #28
                            Hi pat. Hope things improve for you.

                            best laugh I've had in a long time.

                            ๐Ÿ˜‚๐Ÿ˜ƒ๐Ÿ˜™
                            when i can think of something profound i will update this.

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                              #29
                              Thanks all

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                                #30
                                Mine goes up and down like normal. It's one of the very few things still working. ๐Ÿค”x
                                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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