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Riluzole - 2 a day - restarted Saturday 5th June

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    Riluzole - 2 a day - restarted Saturday 5th June

    Okay, after a few weeks on 1 tablet a day, back on 2 a day now. So far, no side affects.
    Mum died with MND in 1979 – I have a wonky gene, probably inherited from her. Reckon mine started sometime in 2018

    #2
    Hope it works well for you EvelynMW And if the side effects retun on 2 Riluzole, please don't feel down if you return to taking 1 per day - it's more important that you feel as well as possible. xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Good luck with no side effects Evelyn, Lynne x
      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

      I'm staying positive and taking each day as it comes.

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