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Amylyx

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    Amylyx

    Is anyone aware of this this trial happening in the US, apparently you can self medicate but expensive?

    #2
    Sounds interesting Daniel Fudge-Harman thanks for that I hadn't heard of itπŸ‘
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

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      #3
      Put AMX0035 into the search box and you'll find previous posts on the topic. xx
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        #4
        Originally posted by Ellie View Post
        Put AMX0035 into the search box and you'll find previous posts on the topic. xx
        Thanks Ellie πŸ€—
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

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