could you who use carbocysteine advise me? I am just finally bringing myself to try some. After struggling to open the bottle, presumably I have to tip the bottle whilst I use the 5 ml pipette thing to get the liquid out? Living on my own with deteriorating hands, I don't see how I can manage this. Any suggestions? Thanks
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Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning! -
To be honest you need carers to do your meds. I open my 60ml and tip the medicine in from the bottle. I put the plunger back in and eject any excess. 👍😁🤗😚xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx -
Heather, I have Medicine Straws which attaches to the tip of the syringe. The straw then goes into the bottle and drawing up the meds is straightforward. I order them with my syringes whenever I need some.
This is what one looks like and they come in various lengths:
Medicine Straw.jpg
Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Thanks Matthew that’s a good idea, and you’re right, carers beckon xxDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Ellie thanks. My dietitian suggested something like that, I thought it looked a bit sharp to then dispense inside your cheek xxDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Or do you unscrew the straw before putting in mouth?Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Ellie I wondered that, or if it needed to slide down your throat to attack and soften your mucus. If you can put it down the tube, maybe I could manage xxDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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