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    carbocysteine

    could you who use carbocysteine advise me? I am just finally bringing myself to try some. After struggling to open the bottle, presumably I have to tip the bottle whilst I use the 5 ml pipette thing to get the liquid out? Living on my own with deteriorating hands, I don't see how I can manage this. Any suggestions? Thanks
    Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

    #2
    To be honest you need carers to do your meds. I open my 60ml and tip the medicine in from the bottle. I put the plunger back in and eject any excess. 👍😁🤗😚xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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      #3
      Heather, I have Medicine Straws which attaches to the tip of the syringe. The straw then goes into the bottle and drawing up the meds is straightforward. I order them with my syringes whenever I need some.

      This is what one looks like and they come in various lengths:

      Medicine Straw.jpg

      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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        #4
        Thanks Matthew that’s a good idea, and you’re right, carers beckon xx
        Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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          #5
          Ellie thanks. My dietitian suggested something like that, I thought it looked a bit sharp to then dispense inside your cheek xx
          Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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            #6
            Or do you unscrew the straw before putting in mouth?
            Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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              #7
              Originally posted by Heather R View Post
              Or do you unscrew the straw before putting in mouth?
              Yes, you do!

              Or it can go through your tube. xx
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                #8
                Ellie I wondered that, or if it needed to slide down your throat to attack and soften your mucus. If you can put it down the tube, maybe I could manage xx
                Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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