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    Pain relief patches

    Hi all. Advise please. due to muscle wastage on my bum i am finding i am waking up in pain. I have an air mattress on its way, but would like peoples experiences with a pain patch. slow release perhaps.
    Diagnosed May 2021 bulbar onset als.

    #2
    Cool idea.i sleep on an air mattress on fur and sheepskin yet pain still wakes me roughly every hour. Happy Days! πŸ˜πŸ˜€πŸ˜˜πŸ€—xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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      #3
      I’m watching for the replies to you Shelly. I hope for similar. X
      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

      I'm staying positive and taking each day as it comes.

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        #4
        Originally posted by shelly21 View Post
        Hi all. Advise please. due to muscle wastage on my bum i am finding i am waking up in pain. I have an air mattress on its way, but would like peoples experiences with a pain patch. slow release perhaps.
        Hopefully the mattress will negate the need for strong and constant pain relief Shelly.

        Were you assessed by your nurse/OT for a pressure relieving mattress and it's that mattress you're awaiting? Hopefully a good, alternating air mattress is being provided.

        I cannot move in bed and my bony areas are at very high risk of developing pressure sores, but I stay comfortable all night on an alternating air mattress. The first one I was given wasn't comfortable but it was replaced for a much better one and now I sleep on a bed of marshmallows πŸ‘πŸ‘πŸ˜πŸ˜

        I had a morphine patch years ago but lasted a week on them as my Princess skin was allergic to the patch adhesive πŸ™„πŸ˜

        Good luck xx
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

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          #5
          I want one but am worried that the pump would be louder
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            #6
            I am not sure re type i have just been told its an inflatable air mattress. I have emailed my OT today as i am due a visit. Thanks all.

            Diagnosed May 2021 bulbar onset als.

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              #7
              Originally posted by matthew55 View Post
              I want one but am worried that the pump would be louder
              That's a very valid concern!

              On my recent holiday, I was given a hybrid mattress and its pump vibrated and pulsated every few minutes, making sleep impossible.

              My home mattress is currently a Domus 4 alternating air mattress given to me as a replacement recently when my old faithful one broke but, tbh, the Domus pump is super quiet that I'd happily keep it And it's very comfy. It's not that my old pump was loud, it's that this one is soooo quiet.

              Ask for one Matthew - it needs to be an alternating air type and one for which the firmess of the air cells can be increased & decreased. And itmay take a few nights to find the best settings, so don't write it off after one night, unless it's like trying to sleep in an MRI machine.

              Oh, I should add, it might be best on a profiling bed.

              Nothing ventured, nothing gained 🀞😘😘
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              ​

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                #8
                Cheers mate I'll email my OT straight away πŸ˜€πŸ€—πŸ˜˜πŸ˜x
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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