Botox

[Hakuna]

Has anyone any experience of using Botox to help with biting cheeks and lips? I presume it wouldn't be available on the NHS but if it would help then I would be prepared to pay.

[Ellie]

I presume you are fed up with jaw clenching Hakuna ?? Is it throughout the day?

I can't recall any member having had such Botox injections but of course that's not saying nobody did, in which case I hope you get a reply.

I'd be concerned if your chewing wasn't near perfect or if your mouth doesn't quite fully close, in case the Botox exacerbated any weakness. xx

[John D]

Has anyone any experience of using Botox to help with biting cheeks and lips? I presume it wouldn't be available on the NHS but if it would help then I would be prepared to pay.

I haven’t but considered Botox for saliva management after having radiotherapy on saliva glands which has been successful to a degree. After talking with medics decided not to go ahead. It would’ve been on NHS.

Have you considered a mouthguard? I paid dentist £300 for it which is the going rate around here. Don’t know if that’s the same everywhere.

[PeterPan]

I now have ridges in my cheeks on both sides in my mouth from biting them inadvertently. Once bitten, bitten again within minutes. I had Botox injected into my salivary glands last week to reduce saliva drooling. No noticeable improvement yet, but I was told it can take two weeks to work. No suggestion of Botox for cheeks.

[matthew55]

Try radiotherapy

[Ellie]

I had Botox injected into my salivary glands last week to reduce saliva drooling. No noticeable improvement yet, but I was told it can take two weeks to work. No suggestion of Botox for cheeks.

🤞🤞 the Botox will soon kick in for you Peter.

The OP's query re Botox is in relation to muscle relaxation, not to reduce saliva. xx

[PeterPan]

The OP's query re Botox is in relation to muscle relaxation, not to reduce saliva. xx

Apologies for the deviation into Botox for saliva

[Ellie]

Apologies for the deviation into Botox for saliva

Oh PeterPan I wasn't telling you off! Just explaining why you weren't offered Botox in your jaw and you had a case of FOMO 😉😁😘

[PeterPan]

Ellie No problem! (Just bitten my right cheek AGAIN )

[matthew55]

Get a gum shield my friend. 👀👌😜😁xx

[Hakuna]

Thanks for the suggestions. It happens mostly when I'm eating or trying to. So don't think a gum shield would help. I asked my dentist for his suggestions but he had nothing to suggest. I think I'll ask the neurologist. I'm investigating having a PEG fitted but things seem to happen slowly in my neck of the woods.

[Ellie]

In the meantime Hakuna make sure you always have Bonjela in the house 😏

Good luck xx

[Johnny5]

I do this too. Up until now I just tolerate it. When I am eating it is like a jolt every now and then that causes you to bite down quickly. Ends up biting my tongue or cheek and OWWW it hurts. Days to heal...then SNAP...there's another one.

I think it is UMN that causes it much like hyperreflexia. Seems like a good explanation and my neuro seemed to agree, but all he did was give me baclofen for spasticity. I want to monitor this to see if anyone has found an effective treatment for this.