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    Hi all.

    Riluzole can cause liver serum elevation. I have been on it since May this year. By September liver ALT now abnormal but only slightly.

    Due next blood test in a weeks time.

    What I wanted to ask is of those members that had to stop taking Riluzole, what was their liver alt levels?

    I would like to carry on taking it as I get on well with it. However I read that it does affect liver damage more in females. I've also read that it can cause liver serums to rise but after a few months it stabilises.

    Would like to hear from those who had to cease taking it please.
    Diagnosed May 2021 bulbar onset als.

    Stopped ages ago but no idea about liver levels but I'm not yellow. ๐Ÿ˜‰๐Ÿค—๐Ÿ˜โค๏ธxx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx


      Originally posted by shelly21 View Post
      By September liver ALT now abnormal but only slightly.
      Shelly, there's quite a big tolerance of raised ALT levels before stopping Riluzole is advised/ordered.

      For those without prior liver impairment, it's 5x normal upper limit of normal ALT range, or 3x if prior liver impairment.

      My own ALT levels were slightly raised for a good while, but were well within tolerance - even now they're occasionally raised.

      You could ask the doctor about supplements to 'support' your liver and/or do some research. xx
      โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.



        Thanks Ellie that's put me at ease. I did read re x 5 and x3 etc but couldn't work out like the way you put it. So glad I asked as it really puts my mind at rest.

        I have researched re ways to help etc and I've started taking a few health meds x
        Diagnosed May 2021 bulbar onset als.