Riluzole

[shelly21 Forum Member Find all posts View Profile Close shelly21]

Hi all.

Riluzole can cause liver serum elevation. I have been on it since May this year. By September liver ALT now abnormal but only slightly.

Due next blood test in a weeks time.

What I wanted to ask is of those members that had to stop taking Riluzole, what was their liver alt levels?

I would like to carry on taking it as I get on well with it. However I read that it does affect liver damage more in females. I've also read that it can cause liver serums to rise but after a few months it stabilises.

Would like to hear from those who had to cease taking it please.

[matthew55 Forum Member Find all posts View Profile Close matthew55]

Stopped ages ago but no idea about liver levels but I'm not yellow. 😉🤗😁❤️xx

[Ellie Forum Member Find all posts View Profile Close Ellie]

By September liver ALT now abnormal but only slightly.

Shelly, there's quite a big tolerance of raised ALT levels before stopping Riluzole is advised/ordered.

For those without prior liver impairment, it's 5x normal upper limit of normal ALT range, or 3x if prior liver impairment.

My own ALT levels were slightly raised for a good while, but were well within tolerance - even now they're occasionally raised.

You could ask the doctor about supplements to 'support' your liver and/or do some research. xx

[shelly21 Forum Member Find all posts View Profile Close shelly21]

Thanks

Ellie

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Ellie that's put me at ease. I did read re x 5 and x3 etc but couldn't work out like the way you put it. So glad I asked as it really puts my mind at rest.

I have researched re ways to help etc and I've started taking a few health meds x