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    Tudca

    Hi everyone. Those of you taking TUDCA independently (not on a trial), where are you getting it?

    I've been getting it from BodyBio where it's £58.99 for 60 500mg pills. I've been taking the recommended dose of 2 per day but just discovered on ALSUntangled that the trial dosage was 1g twice a day. So I am going to double my dose (and the cost 😢).

    Just interested in what others are doing and if there are any significantly cheaper options.

    #2
    Can't you get on the clinical trial alexph ?
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      I've been told trials of AMX0035 and antiretrovirals are happening soon but when I ask I never get given an actual timeline. I've chased the research nurse about it today so hopefully I'll get more info soon. I recently tested negative for SOD1 and C9orf72 and I think they were waiting for those before considering which trials for me to go on.

      I did also register for MND-SMART at St George's but never heard from them since.

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        #4

        "I did also register for MND-SMART at St George's but never heard from them since. "

        I'm still waiting too😏
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          #5
          alexph I really hope you get on a trial soon 🤞🤞 xx
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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            #6
            i started on the tudca trial a month ago
            no idea whether placebo or not
            It's all funny

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