My husband Tim really struggles to sleep at night due to unbearable stiffness in his whole body. Sadly he is quite a way down the horrid MND road. He is now taking Baclofen medication but as yet there has been no change for him. If anyone has had the same experience do they have any tips on what might help the situation.
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Help for night-time stiffness?
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Valley How many mg of Baclofen does Tim take at night?
My spasticity is worse in bed and I often take Tizanidine, in addition to Baclofen - it also lowers spasticity but works in a different way to Baclofen.
Another thing I do is to use an electric blanket, so I'm lying on a warm surface, further relaxing muscles - I always get into a warm bed, if I get cold, my muscles stiffen even more. The blanket is on a low heat, on a timer plug, and comes on intermittently throughout the night so I don't end up bathing in sweat! xxDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Originally posted by Music man's wife View PostChris has recently started taking Clonazepam .
Glad he's sleeping better. xxDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Ellie getting that form was the a right pain in the butt, once I got it tho everything fell into place. My insurance company even paid the mortgage off early so took a lot of stress away only thing I can’t sort out is the weird leg reactions and sensitive feelings in lower regions, tbh tho I have not taking no tablets for months stopped everything and started cbd and cannabis edibles at night now no saliva anymore great night’s sleep and I regained my cough so just trying different things x
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Patw Whoop whoop for finally getting the DS1500 👍👍
Glad to hear that CBD & the full monty are working so well for you, apart from the restless legs.
We had our mortgage paid off a few months after my dx and I can't stress enough the immense relief that brought!
Re the wheelchair: it's hard to get your head around for sure - no way to sugar coat it, it's so in-your-face, a big fat statement of disability 😟
The more you use it, the more you accept its benefits, the less of a monster it becomes. 😘🤗Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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