Announcement

Collapse
No announcement yet.

Cough assist

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    #16
    Ellie I'm certainly going to enquire. Got a phone consultation with respiratory consultant Monday. I have religiously used my nebuliser x4 times per day for the last 2 days and its starting to loosen my chest. X
    Diagnosed May 2021 bulbar onset als.

    Comment


      #17
      🤞 Shelly, you could do with something going your way... xx
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      Comment


        #18
        Hi all. So had respiratory consultant phone mr me today. He suggested cough assist, the Erdosteine and NACSYS and also something called hypertonic for my nebulizer instead of saline.

        MMG huge thank you for the recommendation.

        So those struggling maybe ask your team. I'm yet to hear try it but hopefully be good x
        Diagnosed May 2021 bulbar onset als.

        Comment


          #19
          shelly21 Thanks for the update that’s really helpful to me as I’m due a respiratory review💙🥰
          Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

          Comment

          Working...
          X