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    Well today I had my first choking incident. I didn't do a small choke, oh no! Mine ending with my husband doing the heimlich maneuver.

    So its hot and I love salad but due to bulbar involment I am good and only have small easy to chew food. Baby beetroot, feta cheese and Parma ham. Now I'm from a family of 6 and hence I eat very quickly (in case siblings nick my food). So husband was cutting baby beetroot up into manageable chunks. So me being greedy grabs the one baby beetroot thats not cut. Me thinking I could chew it. Wrong! Got stuck.

    I've never felt close to dying. I was trying tell tom to call an ambulance. I couldn't breath. Tom grabbed me over the Belfast sink and 5 maneuvers later out came the baby beet.

    I am so so lucky that tom was first aid trained.

    I'm a bit sore as the maneuver is basically apply force to your diaphragm.

    This was a massive wake up call for me. Greed certainly doesn't pay.
    Last edited by shelly21; 18 July 2022, 14:24.
    Diagnosed May 2021 bulbar onset als.

    Oh shelly21 thank goodness you are ok and well done Tom. It must have been so scary. I love salad too but have to chop every so finely and then smother it in dressing or mayo, otherwise I cannot chew it. I am greedy too and have to keep reminding myself to take smaller mouthfuls. Hope the soreness eases. x
    Bulbar onset diagnosed Nov 21. No speech, feeding tube, limbs getting weaker but still just about mobile.


      Oh my days Shelly, what a scary experience for you both 😬😬 thank goodness Tom was with you at the time!! Your throat, as well as your diaphragm area might be sore for a few days.

      I'm a fellow salad lover and my carers are excellent dicers of foods at this stage 😏

      You know now anyway: sit on those hands 😁

      We love you Tom 😘
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user


        shelly21 how awful and scary that must have been. I shudder to think what would have happened if you were on your own. I am also from a large family - we do tend to eat faster don't we? I am always so careful with food, but it only takes a small distraction.

        Maybe next time Tom grabs you over the Belfast sink it is for much more pleasant reasons....

        Sending hugs xx
        Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

        Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!


          TinyLady I knew someone's mind would turn smutty 🤪. I never thought re being alone i am lucky that tom can work from home and prepares all my food.

          It was utterly stupid of me x
          Diagnosed May 2021 bulbar onset als.


            Ellie i have always been a rebel and pushed rules. Amazing really how i chose the army/police for a career lol.

            I have never ever been close to fearing death.

            you are right re sore throat. So liquid foods in the form of chocolate shakes for the rest of today and water via peg.

            your normal mental habits often forget you have mnd. Xxx
            Diagnosed May 2021 bulbar onset als.


              Thing is you wont do it again.😮 Not sure I'd be able to do the heimlich manoeuvre I'd probably break his ribs. 😳
              when i can think of something profound i will update this.


                Hope I gave up rocket etc as I felt wary. But like you mayo full fat is in a plenty. You just do things automatically don't you!

                I have fresh cream cake that needs to be eaten but thinking of them when I'm banned today from solids is my punishment for gluttony x
                Diagnosed May 2021 bulbar onset als.


                  Glad you got through it shelly21
                  I'm glad there is some agreement that salads are dangerous - someone please tell my wife
                  She does worry when I am home eating alone.
                  Hi, I'm Eddie.
                  Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                  Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
                  Still wondering what the future will bring.


                    shelly21 how terrifying!! Thank God your hubby was there and acted quickly. I’m not sure that mine would know what to do!?
                    I don’t think you should be to hard on yourself about eating a baby beet. Not your fault at all, you were just enjoying life and food. This disease is horrid. You are constantly having to adjust, and what you could eat and chew safely suddenly changes. The goal posts are constantly shifting, so it’s only natural that it would be so difficult to know what will work/not work.
                    I think you’d better switch to Tiny Lady’s ice cream diet (especially given the heat in the UK)…Might help with the sore throat too…


                      WheelsOfSteel my husband said exactly the same and after today I really agree with him. A few hours after I've had time resting and hopefully no repeat lined up.
                      Diagnosed May 2021 bulbar onset als.


                        AngieCanuck yep the constant adaptions we make really mount up. We have done the big house ones but its everything isn't it. Cutlery, blender when needed, drinking cups, clothes, slippers and thats before any disability aids etc.

                        I do rather love ice cream and can plan my fat food ingredients. No dieting on my watch x
                        Diagnosed May 2021 bulbar onset als.


                          denise seriously I didn't feel a thing until he stopped and then hand waving telling do more. The food got up some of my throat and I had tip head to get it out.

                          All I could think of is with the ambulance delays that I would die.

                          Diagnosed May 2021 bulbar onset als.


                            shelly21 I imagine a baby beet is just the shape for a good throat stopper, poor you. Someone sent photos of them eating gorgeous looking crispy fish and chips at the seaside ….😢😩
                            Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!


                              shelly21 this is it. We have to try and do something because waiting for an ambulance would be a death sentence. I recall the last time I spoke to someone about it they said I'd risk breaking his ribs and puncturing his lungs. Think I'd rather try than do nothing. Looks like we need to update our life saving skills.
                              when i can think of something profound i will update this.