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    Dry mouth

    Dry mouth....pineapple juice iss it?

    Doug
    Diagnosed April 2017

    #2
    Doug Carpenter

    I was given biotene moisturising gel at the hospital for dry mouth.

    Main reason for mine is probably not clinical when I get it. Its just that I haven't eaten or drunk anything.

    Comment


      #3
      Doug Carpenter I'm unsure if you're asking if pineapple juice is a cure or a cause for dry mouth, but the answer is a no for both.

      As mentioned, Biotene is one of the solutions, as well as Xylimelts and wet/damp swab sticks.

      Presumably your humidier is working properly and set to 5? xxx
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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        #4
        Humidifier on 2
        doug
        Diagnosed April 2017

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          #5
          An easy trial would be to increase the humidifier setting and see if that improves your situation.

          Perhaps the room air is drier because of central heating? xx
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          Comment


            #6
            Ellie Many thanks for the recommendation of biotene. My Dad has been having this issue at night recently and this has helped

            Comment


              #7
              Seeing as humidifiers have been mentioned...
              I have been using overnight NIV for a couple of months, and have become accustomed to my mouth feeling like dry cardboard every morning.
              They gave me a humidifier last week, and it doesn't seem to make any difference.
              I have turned it up to max (5) and the water reservoir only gets warmed to barely above body temperature.
              Does that sound right?
              Hi, I'm Eddie.
              Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
              Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
              Still wondering what the future will bring.

              Comment


                #8
                WheelsOfSteel Which NIV machine do you have, Eddie? Can you see a new symbol on the screen as some machines 'need to be told' they have a humidifier attached? xx
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                Comment


                  #9
                  Hiya Ellie - it's a Philips DreamStation.
                  Everything seems to be in order, since there is indeed a new symbol on the screen when the humidifier is attached, and the settings respond to turning the dial on the machine.
                  Just doesn't seem to do much
                  Hi, I'm Eddie.
                  Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                  Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
                  Still wondering what the future will bring.

                  Comment


                    #10
                    WheelsOfSteel That's disappointing. My Nippy 4 humidifier definitely makes a difference.

                    You're not getting 'rainout' (condensation build up), over-filling the water chamber or using a heated hose?

                    They don't need to be hot, around 30-31o is normal, depending on the humidity and time of year. Can you think of any environmental reasons affecting the humidifier? xx
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    Comment


                      #11
                      WheelsOfSteel I had another thought, Eddie...

                      Does your mouth stay shut when you sleep? xx
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      Comment


                        #12
                        Ellie - No. I reckon most of my time on NIV is spent breathing through my mouth
                        Pre-NIV I was having breathing difficulties, and probably got into the habit there.
                        I can find it more restful trying to get to sleep breathing through my nose, but I often find it hard to keep up
                        Hi, I'm Eddie.
                        Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                        Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
                        Still wondering what the future will bring.

                        Comment


                          #13
                          Originally posted by WheelsOfSteel View Post
                          I reckon most of my time on NIV is spent breathing through my mouth
                          And that's the reason for the dry mouth - your mouth is not getting moist air.

                          I know you have a "mouth / nose" mask which, in theory, should hold your mouth closed, particularly the masks which extend from the chin to the nostril. Perhaps a different size mask or a different type/brand of mask is what you need. xx
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          Comment

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