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Webinar: ALSUntangled – Vitamins and Supplements in ALS - 18/01/2023

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    Webinar: ALSUntangled – Vitamins and Supplements in ALS - 18/01/2023

    Courtesy of NEALS in the US, I know this upcoming webinar will be of interest to many forum members.

    "In this webinar, Dr. Bedlack will review ALSUntangled, including how patients and families can use it to make more informed decisions about vitamins and supplements. He will show how he guides patients at Duke who want to self-experiment with these products and share his current most and least favorite ones."

    Register here xx

    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
    .

    #2
    Hoping to be able to watch this tomorrow. Does anybody know if you miss a webinar are they able to be viewed afterwards somehow?
    Diagnosed June 2022. Confirmed MND. Limb onset. Symptoms started November 2020.

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      #3
      Originally posted by Zante View Post
      Does anybody know if you miss a webinar are they able to be viewed afterwards somehow?
      Yes, the webinars are recorded and available after the event. xx
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
      .

      Comment


        #4
        Ellie Ok brilliant . I want to listen to it on my phone, on the registration email it says that for telephone you dial the usa number, am assuming this means to listen through the actual telephone and not using a mobile web browser?! I was planning on using mobile internet for it as am out and about tomorrow so planned to attempt a multi task! x
        Diagnosed June 2022. Confirmed MND. Limb onset. Symptoms started November 2020.

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          #5
          Hmmm, at the top of my confirmation email there’s a link which I just click to join; will that not work on your phone's browser?
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
          .

          Comment


            #6
            Ellie sorry missed your reply last night. Am listening to it now on mobile Web browser without any problems xx
            Diagnosed June 2022. Confirmed MND. Limb onset. Symptoms started November 2020.

            Comment


              #7
              If anyone is interested in viewing the webinar, click here - there is a fairly lengthy preamble but stick with it.
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
              .

              Comment


                #8
                Thanks, Ellie. This webinar was very interesting - and also reassuring, as I had already identified five of the supplements in Dr Bedlack's top tier from my own research. It is good to get some independent expert confirmation that I am proceeding in a sensible direction, and also that these supplements appear generally safe.

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