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MND Sufferers, Time to take Control

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  • Jer788
    replied
    Hi Billy, totally agree but how do we go about this ?
    Regards Jerry

    Leave a comment:


  • Graham
    replied
    Exactly, Billy.

    We will see how much support I get on my DIY treatment plan.

    FYI, I had to get NHS to organise my gene test myself. Incredibly, it is not routine.

    Leave a comment:


  • billy106
    started a topic MND Sufferers, Time to take Control

    MND Sufferers, Time to take Control

    Time for one centre of Excellence , too much money from good intentioned donators , then run by non suffererers , who finance themselves and career funders backslapping events ,also trials after trials , and back slapping events whether in Glasow or Australia. Time for one Centre of Excellence , just for MND nothing else . Too many freeloaders. Not as much as an Aspirin in the last 30 yrs . Support this and push for it . Too many so called discoveries on so called discoveries , ie grant requests ,Its time MND Sufferers had a say. Lets go for it. No more Spongers
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