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    RaphaLX

    do you have knowledge about this investigational drug - RaphaLX.

    https://www.newbiotic.com/about-raphalx

    they seem pretty confident in this drug

    " RaphaLX™ is the company's flagship product that has been granted Orphan Drug Designation (ODD) by the FDA to treat ALS (amyotropic lateral sclerosis). It is a breakthrough formulation derived from human gut bacteria (microbiome), which in human studies has been observed to slow down the progression of the disease and in certain cases reverse the condition"

    and I found this :

    https://survivalsewj.com/wp-content/...1-20-2020-.pdf

    #2
    Good morning Timm

    I looked in because Rapha is a cycling brand in the UK!

    This looks like another route to reduce glutamate and I guess this is to be welcomed but I can't see any clinical trial data.

    Perhaps somebody else will come along in a minute with that information?
    Warmly


    Andy

    ​Diagnosed 03/2015. Limb onset (arm) sporadic ALS/MND.
    MND hitting - now 50% left arm and 90% right arm, plus other bits including left shoulder

    "Things turn out the best for people who make the best of the way things turn out"

    Comment


      #3
      So far, a small pilot study has been carried out.

      Although the results are of limited value, they are promising enough for further trials to take place (as explained under the heading 'Conclusions') ...

      http://https://www.newbiotic.com/news-blog/results-of-an-open-label-prospective-trial-of-raphalx-probiotic-compound-in-als-patients

      Best wishes
      Kayleigh
      Last edited by Kayleigh; 5 February 2020, 16:18.

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