"We are looking forward to seeing you all on our next webinar July 29th at 5pm PST, 8pm EST on ALS Reversals with Richard Bedlack MD, PhD. Dr. Bedlack is a Professor of Neurology at Duke and the Director of the Duke ALS Clinic. Dr. Bedlack has won many awards for teaching and patient care and has published more than 100 ALS articles He is also the leader of ALSUntangled and the ALS Reversals program. This will be one to not miss!" you
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Warmly
Andy
Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 50% left arm and 90% right arm, plus other bits including left shoulder– Campaign contact Winchester and Southampton branch, and trustee of the Association
"Things turn out the best for people who make the best of the way things turn out" -
Thanks Andy.
Do you have a link to that webinar?
Doug -
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Might be worth staying up for as this is 11pm UK.
BarryI’m going to do this even if it kills me!Comment
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I think it's actually 1 a.m. (8 p.m. EST plus 5 hours)
DougComment
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Yes it's 1am.
Hopefully it'll be available on their YouTube channel afterwards.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Sorry for the wrong info. I won’t be watching live but as Ellie says it should be available on YouTube.I’m going to do this even if it kills me!Comment
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Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Er what's ALS?Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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AmyoLateral Sclerosis, or ALS, is the most common of the motor neurone diseases.
Here we tend to use the blanket term MND, but many other parts of the world, notably North America, use ALS, PLS, PBP, PMA etc to describe their disease variant.
Love Ellie.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Good morning,
Just to complete the confusion, the USA also use the name Lou Gehrig's disease named after a particular baseball player who was famous for having MND – or ALS or whatever it wasWarmly
Andy
Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 50% left arm and 90% right arm, plus other bits including left shoulder– Campaign contact Winchester and Southampton branch, and trustee of the Association
"Things turn out the best for people who make the best of the way things turn out"Comment
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