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    #16
    Originally posted by Beemer View Post
    I was not asked why I pulled out of Commend, but I would of let them know if asked.
    I have been asked if I am interested in assisting with research into upper limb support, something that I am really interested in. No idea yet when or if it will happen with the current Covid restrictions.
    Beemer the upper limb support research sounds really interesting, who is doing this please?

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      #17
      Originally posted by SueM View Post
      Beemer the upper limb support research sounds really interesting, who is doing this please?
      Hi Sue,

      I am a patient member of the Sheffield research group where this study is being undertaken and I watched a video presentation about it last Thursday. I will share some details and contacts once I receive them. I am normally subject to confidentiality rules but I understand that this project leader is looking to gain an understanding of the benefits to people with MND therefore needs to hold online interviews.

      Best wishes,
      Barry
      I’m going to do this even if it kills me!

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        #18
        Barry52 thank you that’s really helpful
        Best wishes Sue

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          #19
          Originally posted by Barry52 View Post

          Hi Sue,

          I am a patient member of the Sheffield research group where this study is being undertaken and I watched a video presentation about it last Thursday. I will share some details and contacts once I receive them. I am normally subject to confidentiality rules but I understand that this project leader is looking to gain an understanding of the benefits to people with MND therefore needs to hold online interviews.

          Best wishes,
          Barry
          Hi Barry/Sue

          I have just received an email inviting me to help with the project, regarding the Upper Limb Orthosis project which is headed by the University of Sheffield.
          The email was from Miss Edith-Clare Hall [email protected] .ac.uk

          Barry, I have not seen the presentation video.

          Dave
          Diagnosed 2nd Jan 2020
          Both arms/shoulders affected, left worse than right.
          Progressive Muscular Atrophy suspected

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            #20
            As promised here are the details of the upper arms orthosis project. Edith is the project leader and I suggest if you wish involvement then please get in touch with her.

            Upper Limb Orthosis Project:
            Co-designers wanted!
            Project Background
            We are looking for first hand input
            from people living with Motor Neuron
            Disease and healthcare
            professionals to contribute to our
            design project to develop a device to
            assist upper limb weakness and
            preserve independence.
            User voice and participation is key in
            the human centred design process
            and will define the device context and
            requirements. Through this approach
            this project aims to challenge the
            bulky, expensive and often ineffective
            market norm of orthoses for people
            living with MND.
            How you can help
            We are seeking participation from people living with MND and relevant
            healthcare professionals as co-designers at key project design stages
            including:
            - Consultations and questionnaires
            - Key movements, and features
            - Review of design specification
            - Direct feedback on designs and prototypes
            Co-Designers contributions will define the project trajectory and directly
            determine engineering design and decision making.
            Consultations and questionnaires will be adaptable to suit individual
            needs and schedules. No engineering experience is required – just a
            willingness to contribute experience!
            Interested?
            Please get in contact
            Name:
            Edith-Clare Hall (lead engineer)
            Email:
            [email protected]
            I’m going to do this even if it kills me!

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              #21
              Thank you Dave and Barry, I’ve emailed Miss Hall to say I would be interested.
              Best wishes Sue

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