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International Symposium on MND/ALS – December 2020

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    International Symposium on MND/ALS – December 2020

    Good afternoon,

    I'm wondering if anybody else here attended the International symposium last week and wondered what people have picked up from it if indeed they had.

    The 2 things that stayed with me particularly, aside from something about theracurmin being ineffective was;

    1) The role of the cerebellum and MND as opposed to the higher bits of the brain - apparently it's clear that there is MND damage in the cerebellum as well as in the cerebral cortex

    2) the presentation on financing research and drug development on a not-for-profit basis using the spread of public information as a way to avoid the patenting in of ideas
    Warmly


    Andy

    ​Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association

    "Things turn out the best for people who make the best of the way things turn out"

    #2
    Hello Andy,

    I had hoped to follow the symposium but I objected to the registration fee. I have since looked for the information about curcumin you referred to but I can’t find the data. If you have any clues as to how I can find this I would appreciate guidance. I take curcumin daily in a liquid form and whilst it may not help directly with MND I believe it aids my healing process from the many injuries related to falls.

    Best wishes,
    Barry
    I’m going to do this even if it kills me!

    Comment


      #3
      Good afternoon Barry,

      Ah! I'm afraid I got a free pass as a trustee presumably recompense for my membership of BRAP – the biological research assessment panel – and as a learning to better equip me for that task

      Concerning curcumin I have this link if that is any help – https://youtu.be/YHGNIa9X2FM - I think it's quite a small trial and I did not have a chance to trying quiz the academic who in theory was supposed to be present at her poster session
      Warmly


      Andy

      ​Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association

      "Things turn out the best for people who make the best of the way things turn out"

      Comment

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