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SLS-005 or trehalose
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SLS-005 or trehalose
Warmly
Andy
Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association
"Things turn out the best for people who make the best of the way things turn out"Tags: None
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Originally posted by nunhead_man View PostHello,
Me again!
Again have warriors here seen anything about SLS-005 or trehalose?
https://alscrowd.org/fda-grants-orph...N-OrDmcSpWZVZU
I became aware of trehalose in my career within the sugar industry as it is used as an artificial sweetener in the food and beverage industry. I am amazed that it may have benefits in the medical care system.
Thanks for posting the link.I’m going to do this even if it kills me!
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Originally posted by nunhead_man View PostAgain have warriors here seen anything about trehalose?
You would need to do research on the dose of trehalose - how the body metabolises trehalose is very complicated and the method of its administration in clinical trials is IV. Titrating an IV dose of 30g to an equivalent oral administration is very difficult.
Plenty of work to keep you going over the holiday period!
Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Good afternoon Ellie
Thank you for your DIY point of view!
New information that the test testing is being done by IV.
No idea how much that would turn into as an oral dose of the sugar but I guess it is several spoonfuls!Warmly
Andy
Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association
"Things turn out the best for people who make the best of the way things turn out"
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Originally posted by nunhead_man View PostNo idea how much that [30g of IV trehalose] would turn into as an oral dose of the sugar but I guess it is several spoonfuls!
Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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