Find a cure

[Andrew]

I have been looking at the https://www.alsuntangled.com/ site referenced in various posts on this string.

The following off label treatments caught my attention with a grade A in the Case section.

Has anyone tried any of the following and if so were there any benefits.?


Accupuncture
Cannabis/CBD oil
Gluten free diet.

Many thanks

[Ellie]

Andrew If there are podcasts attached to those 3 completed review, take a listen to them. I always find them very interesting. xx

[Andrew]

Andrew If there are podcasts attached to those 3 completed review, take a listen to them. I always find them very interesting. xx

Hi Elle

Yes I too found the podcasts really interesting. I have since found some great threads on here particularly about the possibilities of cannabis slowing progression and relieving the symptoms of MND. Some of the posts were quite old so I am hoping hoping there may be some current users on the forum who could share their own experiences,

Similarly interested if anyone has experimented with Accupuncture or the gluten free diet.

[Ellie]

Andrew I had acupuncture for spasticity, its benefits barely lasted the week between sessions, and it had zero impact on progression, not that I expected any...

[Andrew]

Andrew I had acupuncture for spasticity, its benefits barely lasted the week between sessions, and it had zero impact on progression, not that I expected any...

Thanks Ellie. Please could you let me know what specifically the benefits were that you experienced and what sort of Accupuncture did you try?.

[Ellie]

Needle accupuncture to decrease muscle tone in lower legs and to increase shoulder mobility - got a few days improvement before muscle tone reverted to high so, after an expensive 3 months, I stopped going, started on meds and never looked back. 😏

[Andrew]

Needle accupuncture to decrease muscle tone in lower legs and to increase shoulder mobility - got a few days improvement before muscle tone reverted to high so, after an expensive 3 months, I stopped going, started on meds and never looked back. 😏

Thanks Ellie. What meds were they and which do you think gave you the best results?.

[Ellie]

If you're asking which meds I use specifically forr spasticity, I take Baclofen and, to a lesser extent, Tizanidine, both of which I find effective.

The other daily meds I take are for symptom control - saliva, restless legs, as well as the above - and I also take Riluzole, then, to protect the lining of my stomach from all those meds, I take Lansoprazole.

[Andrew]

If you're asking which meds I use specifically forr spasticity, I take Baclofen and, to a lesser extent, Tizanidine, both of which I find effective.

The other daily meds I take are for symptom control - saliva, restless legs, as well as the above - and I also take Riluzole, then, to protect the lining of my stomach from all those meds, I take Lansoprazole.

Thank you Ellie