UK petition to get government to put money into research for MND

[Mary C]

Hi. Not sure if everyone is aware that if you google UK petitions you get to the site where it tells you what open petitions are ongoing.There is one that is asking for government funding for MND research still open.so the more signatures we all can get the better.I wanted to post this elsewhere on this site but couldn't get to where it allowed me to add a new topic(Any advise welcome)Mary

[matthew55]

I'm sorry to say that in my experience they can ignore it no matter how many people ask for it. I'm just sorry I am going to miss the revolution. 😉😄x

[Barry52]

Hi Mary,

To add a new topic click forums on the top toolbar and select the subject matter (in this case I suggest Get Involved). + subject and away you go.

[Gordan1111]

Hi Mary. I've signed. And written note to MP. So can ignore that too. But sent anyway. X

[matthew55]

MPs are a waste of space. 😄x

[Mary C]

Hi Matthew, well I prefer to try and hope for future generations things will change.I am trying to encourage people to sign so i dont want to be negative.best wishes Mary

[Gordan1111]

Maybe but they're all we've got in the meantime innit. I'll see she replies ...

[Bowler]

Mary C signed and shared

[matthew55]

If it makes you happy then more power to your elbow. 😄👍😍x

[Admin_MND]

Hi. Not sure if everyone is aware that if you google UK petitions you get to the site where it tells you what open petitions are ongoing.There is one that is asking for government funding for MND research still open.so the more signatures we all can get the better.I wanted to post this elsewhere on this site but couldn't get to where it allowed me to add a new topic(Any advise welcome)Mary

Thanks Mary C for flagging this - you beat us too it! We have just shared a post encouraging everyone to sign the petition https://forum.mndassociation.org/for...tion#post45380

[Suefromwakey]

2 signatures from here!

[Deb]

Thanks Mary,
We've signed and shared x

[Tess]

Signed and shared here too. Came on here today to mention it too. Deadline of July so got to try keep momentum this time🙈. There's been so many petitions in the past flopping as they've just not quite hit target.

You're so right Mary, all about positivity. If anything it's hope for the future, that one day someone who receives the horrific news can be much more hopeful when they know there's a cure.

[Barry52]

MPs are a waste of space. 😄x

I wrote to my MP on several occasions and I always got a reply however it was a standard political response. Now that he is Minister of State for Housing, Communities and Local Government he doesn’t acknowledge my email.

[matthew55]

Sadly this is why we will never have what we so badly need in this country. Burn it all down and rebuild Great Britain from the ashes. 😄x