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"MNDA and Doddie Are Misguided" - Health Minister

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    "MNDA and Doddie Are Misguided" - Health Minister

    Ring-fenced funding stops great science... obvious in-it.

    E-petition debate relating to research into motor neurone disease - 12 July 2021 - YouTube
    Copyright Graham

    #2
    I didn't know that the Minister was living with MND/ASL? ๐Ÿค”๐Ÿ˜‰๐Ÿง๐Ÿคญxx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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      #3
      I listened to the debate yesterday and was very disappointed with the Ministers response. In essence we are providing general funding and will not provide specific funds for MND. ๐Ÿ˜ข
      Richard
      Richard

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        #4
        I listened to it all with some hope until Minister went into However ..

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          #5
          I wish I knew why some illnesses are more worthy of funding than others. Especially when the illness is untreatable/terminal. Shouldnโ€™t that make it move up the priority list ?
          Whilst I wouldnโ€™t wish it on anyone I canโ€™t help thinking that if those who make the decisions could walk in our shoes ( or sit in our wheelchairs ) for even a day, their decisions may be different.
          I listened to the debate too, and despite all the efforts of those supporting our cause, was left feeling that , in the great scheme of things, we are of little consequence. Our fate has been decided, therefore why spend money on us, present or future. Lizzie

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            #6
            The sooner we accept that we are merely part of the herd the happier we will be ๐Ÿ˜‰๐Ÿคญ๐Ÿ˜„๐Ÿ˜xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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              #7
              The Health Minister put great store in the things that we do receive.

              Grid.
              Direct Payments or funded care.
              Multi-disciplinary support.

              It would be interesting to know how the Health Minister thinks we should make progress? She didn't explain.
              Copyright Graham

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                #8
                It's unreal !that an episode of Quincy M.E is !still! relevant 40!years later, in the USA they have orphan drugs development, but big pharma has no interest in developing a drug if there's no obscene payback.

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                  #9
                  And an alpaca got an e-petition of 100,000 votes to save it... !!!

                  https://www.youtube.com/watch?v=zrzMhU_4m-g

                  I despair sometimes with people.
                  Copyright Graham

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                    #10
                    I heard of a lady that lived not a quarter of a mile from me had inoperable !cancer!, was given two months to live, yet the DWP completey refused her any! help, British governments are truly fascist!

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