"MNDA and Doddie Are Misguided" - Health Minister

[Banned]

Ring-fenced funding stops great science... obvious in-it.

E-petition debate relating to research into motor neurone disease - 12 July 2021 - YouTube

[matthew55]

I didn't know that the Minister was living with MND/ASL? 🤔😉🧐🤭xx

[richard]

I listened to the debate yesterday and was very disappointed with the Ministers response. In essence we are providing general funding and will not provide specific funds for MND. 😢
Richard

[Gordan1111]

I listened to it all with some hope until Minister went into However ..

[Lizzie]

I wish I knew why some illnesses are more worthy of funding than others. Especially when the illness is untreatable/terminal. Shouldn’t that make it move up the priority list ?
Whilst I wouldn’t wish it on anyone I can’t help thinking that if those who make the decisions could walk in our shoes ( or sit in our wheelchairs ) for even a day, their decisions may be different.
I listened to the debate too, and despite all the efforts of those supporting our cause, was left feeling that , in the great scheme of things, we are of little consequence. Our fate has been decided, therefore why spend money on us, present or future. Lizzie

[matthew55]

The sooner we accept that we are merely part of the herd the happier we will be 😉🤭😄😁xx

[Banned]

The Health Minister put great store in the things that we do receive.

Grid.
Direct Payments or funded care.
Multi-disciplinary support.

It would be interesting to know how the Health Minister thinks we should make progress? She didn't explain.

[Guest]

It's unreal !that an episode of Quincy M.E is !still! relevant 40!years later, in the USA they have orphan drugs development, but big pharma has no interest in developing a drug if there's no obscene payback.

[Banned]

And an alpaca got an e-petition of 100,000 votes to save it... !!!

https://www.youtube.com/watch?v=zrzMhU_4m-g

I despair sometimes with people.

[Guest]

I heard of a lady that lived not a quarter of a mile from me had inoperable !cancer!, was given two months to live, yet the DWP completey refused her any! help, British governments are truly fascist!