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ALS TDI Summit Friday 5th November.

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    ALS TDI Summit Friday 5th November.

    The ALS Therapy Development Institute (ALS TDI) is the largest drug discovery lab in the world focused solely on finding treatments for ALS.

    It’s holding its annual virtual Summit online on Friday 5th November at 1pm Eastern US time (6pm for us) and should appeal to anyone interested in drug discoveries. It’s usually an informative event and, of course, you don’t have to attend the entire event.
    Don’t be put off by the “2022” date, which is clearly a typo! And don’t be put off by the donation request, you don’t need to donate to attend.

    ALS TDI Summit Agenda
    ALS TDI Research Update
    1:00 – 3:15 - Updates on the Latest Drug Discovery at ALS TDI

    Google Guest Presentation
    3:30 – 4:15 – Google Update on Project Euphonia

    Award Presentation
    4:15 – 5:00 – Leadership Award Presentations
    4:15 – 5:00 - Presentation of Leadership Awards


    Google's Project Euphonia is a research initiave focused on people with atypical speech be better understood.

    To register for the Summit, click here

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


    #2
    Ellie thanks will register👍😉😘
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

    Comment


      #3
      Thanks Ellie x

      Comment


        #4
        Thanks Ellie. Have registered.

        Doug x

        Comment


          #5
          I'm very sorry but words fade and only actions make an impact. 😉🤔😘😍xx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

          Comment


            #6
            Knowledge is power - someone once said 😉
            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

            Comment


              #7
              Blackmailers probably 😉🤔😂😘xx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

              Comment


                #8
                for any matthew55 The mind boggles at how you think new drugs are discovered for any illness or condition - and, no, a stork doesn't bring them, just saying 😉😏😘
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                Comment


                  #9
                  The best they can come up with is not exactly a miracle cure. I'm just saying that glad hatting is not as productive as working in a lab. 🤗😁😘😍xx
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

                  Comment


                    #10
                    One day the best 'they' can come up with could be a 'miracle cure'....or better treatment options. Hopefully discussing the ongoing work in labs....
                    Worth a listen anyway....you never know 🙏😉🤔
                    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

                    Comment


                      #11
                      Originally posted by matthew55 View Post
                      I'm just saying that glad hatting is not as productive as working in a lab.
                      Erm, helloo... ALS TDI is the world's foremost drug discovery lab focused solely on ALS.

                      Always best to know what you're dissing in advance of said dissing 😏😘


                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      Comment


                        #12
                        I'm not dissing anything. But I hope they don't come up with anything that can reanimanit dead tissue or artificial muscle. The implications are horrendous.
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

                        Comment


                          #13
                          Originally posted by matthew55 View Post
                          I hope they don't come up with anything that can reanimanit dead tissue or artificial muscle.
                          You've been watching Frankenstein again, haven't you 😉😍😍😘

                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          Comment


                            #14
                            I'm actually thinking more George Romero. 😉😁🤗😍xx
                            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

                            Comment


                              #15
                              Originally posted by matthew55 View Post
                              George Romero.
                              I had to google him - now I see into your mind 😬 😱😱 xx

                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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