The original Dawn of the Dead is, to my mind, the best zombie film ever made. ππ€ππxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
I'll take your word on that, won't catch me watching Zombie films πππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Don't worry it's not real, not yet anyway! πππ€πxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Look forward to listening in to this Ellie so it's 6pm our timeπ€πππ»Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Actually, it's at 5pm our time / 1pm Boston - they didn't change clocks, so we're now only 4hrs ahead.
You got the Zoom link to join the meeting? xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Yes I've installed zoom on my phone Ellie ...and it's linked to the meeting. Thanks chickπInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Have registered but no link?
help!
DougDiagnosed April 2017Comment
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Could be in your e-mail Doug....or maybe spam folder??Originally posted by Doug Carpenter View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Yes Doug Carpenter definitely check your Spam folder - I received a second 'reminder' link in the last 30mins. xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Thanks Ellie I have registered too, a Zoom link has been promised but not received yet...
Correction, it's just arrived
Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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Anyone in the meeting?
Just says the meeting host will let you in soonπ€
Ok....inππ»Last edited by LindaB; 5 November 2021, 17:03.Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Sorry I won't be able to attend I'm too busy watching paint dry ππππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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I guess everyone is enjoying fireworks as I only posted that comment to get a reaction sorry.Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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I watched the scientific stuff in the first half but hope there is a recording so I can go over it again. In a former life I was a biochemist but it was still too much and too fast for me to take in. What did everybody else think? With so many possible contributing factors to MND itβs like searching for a needle in a haystack
Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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Rosemary6NT Yes, they will have the recording available on the ALS TDI website.
You'll learn the ALS-specific terminology and concepts in due course, I'm sure - the more you read, the more you learn, if you want to, that is, there's no compulsion...
xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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