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ALS TDI Summit Friday 5th November.

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    #16
    The original Dawn of the Dead is, to my mind, the best zombie film ever made. πŸ˜πŸ€—πŸ˜˜πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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      #17
      I'll take your word on that, won't catch me watching Zombie films 😍😍😘
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        #18
        Don't worry it's not real, not yet anyway! πŸ˜‰πŸ˜πŸ€—πŸ˜xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #19
          Look forward to listening in to this Ellie so it's 6pm our timeπŸ€”πŸ˜‰πŸ‘πŸ»
          Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

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            #20
            Actually, it's at 5pm our time / 1pm Boston - they didn't change clocks, so we're now only 4hrs ahead.

            You got the Zoom link to join the meeting? xx
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            ​

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              #21
              Yes I've installed zoom on my phone Ellie ...and it's linked to the meeting. Thanks chick😘
              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

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                #22
                Have registered but no link?
                help!
                Doug

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                  #23
                  Originally posted by Doug Carpenter View Post
                  Have registered but no link?
                  help!
                  Doug
                  Could be in your e-mail Doug....or maybe spam folder??
                  Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

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                    #24
                    Yes Doug Carpenter definitely check your Spam folder - I received a second 'reminder' link in the last 30mins. xx
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    ​

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                      #25
                      Thanks Ellie I have registered too, a Zoom link has been promised but not received yet...
                      Correction, it's just arrived

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                        #26
                        Anyone in the meeting?

                        Just says the meeting host will let you in soonπŸ€”

                        Ok....inπŸ‘πŸ»
                        Last edited by LindaB; 5 November 2021, 18:03.
                        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. Generally weak. Mostly terrified.​​​​​​

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                          #27
                          Sorry I won't be able to attend I'm too busy watching paint dry πŸ˜‰πŸ˜πŸ‘€πŸ˜xx
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                            #28
                            I guess everyone is enjoying fireworks as I only posted that comment to get a reaction sorry.
                            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                              #29
                              I watched the scientific stuff in the first half but hope there is a recording so I can go over it again. In a former life I was a biochemist but it was still too much and too fast for me to take in. What did everybody else think? With so many possible contributing factors to MND it’s like searching for a needle in a haystack

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                                #30
                                Rosemary6NT Yes, they will have the recording available on the ALS TDI website.

                                You'll learn the ALS-specific terminology and concepts in due course, I'm sure - the more you read, the more you learn, if you want to, that is, there's no compulsion...

                                xx
                                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                                ​

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