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This is major news as it is not just £50m, it will drag much more from industry and other parties.
This is the end of the first stage of a process that started back in December 2019, and has involved discussions both politically but also with those senior civil servants that actually make the science decisions.
Just taking it in. Today is a cause for major celebration, celebration, which we are so short of in living with MND.
This is like about 7 ice bucket challenges rolled into one in terms of pure hard cash!
Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.
This is great news !.... I just hope Boris gets his finger out and makes the funding available ASAP.
It might not help me but there’s hope for sufferers in the future 🤞🤞
Well done to all the campaigners, petition signers & supporters 👏🏻✊🏻👍🏻👏🏻
Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.
and this highlights in particular the severe lack of funding for 'translational science' for neurodegenerative diseases. It's almost written for us!
Currently researchers would have to apply to over 10 funds to achieve what this single commitment will now do! It would otherwise take years just to write the applications without any actual research being done.
Of course, this is just step 1, but a commitment to give more than 7 (seven) times the funds raised in the ice bucket challenge here is major boost!!
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