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Edging closer.........

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    Edging closer.........


    #2
    Thanks aussiegirl will read that with interest 👍🏻
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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      #3
      Now that is interesting....
      Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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        #4
        Only time will tell.
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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          #5
          Thanks aussiegirl x

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            #6
            Thanks for sharing this, very interesting reading. It feels like we are moving closer to an effective treatment all the time.

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              #7
              Thanks for sharing
              Hi, I'm Eddie.
              Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
              Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
              Still wondering what the future will bring.

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                #8
                It started with a tongue that wouldn't move properly and slow speech after burning myself and taking clindamycin. I blamed that for my yellow tongue but when it didn't improve I was worried. I went private for maxilloacial and got an urgent NHS referral to see a neurologist at royal free. A shocking diagnosis was given and I couldn't even have my husband in with me to hear it. I am awaiting results of an anti body test to confirm. This has been the worst week of my life .

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                  #9
                  Hi Hairbsb it's a terrible shock isn't it. But welcome xx

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                    #10
                    Gordan1111 thank you. Today is the first evening I haven't thought about it to the point of just wanting to sleep. So thank you

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