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    United2EndMND Update

    Morning everyone. A short update on our website on the campaign. Subscribe for updates. I sometimes forget to post on this forum. It's on Twitter and various Facebook groups.

    https://patientsunited2endmnd.org/20...status-update/

    #2
    You must love weirdos and odd people too much. 😏😜😋😎xx
    ​​​​
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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      #3
      Well you don't have to read the other Twitter stuff but it is the platform to share information and get widespread access. As is Facebook.

      Use for the correct reasons and it is brilliant.

      We only got the petition signed because of two Facebook groups and their sheer size in reality and we only got to ministers because of it etc.

      Lee

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        #4
        Thanks Onein300 that's really helpful 👍🏻
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          #5
          Thanks Onein300

          You are doing great work for us all. I now follow the updates on Twitter.
          Diagnosed 3rd November 2021 Bulbar Onset

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