If this is your first visit, be sure to
check out the Forum Guidelines. You will need to Register
before you can post. All registrations are manually approved by the Forum Admin team to try and help prevent spam so there may be a slight delay between registering and being able to post.
To start viewing posts,
select the section of the forum that you want to visit from the selection below.
Confusion here certainly in that I knew that the USA is behind us (in more ways than one!)
But I was not quite sure how much until I looked and then realised I probably could not take part in all of it, given it is 16 hours BST (British summertime)
Warmly
Andy
Warmly
Andy
Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association
"Things turn out the best for people who make the best of the way things turn out"
Interesting webinar. Available for a month apparently.
A good summary of current drug trials - and a realistic comment on Endaravone. I am more and more convinced that a treatment for some forms of familial MND will be found sooner rather than later and well ahead of treatment for sporadic MND.
It highlighted the complexity and duration of the drug development process, which is not helped in the screening of patients by the huge spread of symptoms and variable rates of progression we know only too well.
I found their precision medicine program fascinating, including the use of accelerometer data and enlisting the help of Google in analysing 83,000 voice recordings as predictors of progression.
The ALS Town Hall, hosted by ALS TDI, is a virtual forum for that allows the ALS community to safely convene while social distancing and discuss ALS research.
Comment