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    My husband is having acupuncture sessions at the moment. There isn't much of a noticeable improvement, but maybe it's stabilising the symptoms.

    Anyway, the clinician mentioned that I might like to look up apitherapy on the net. I have, and I'm not sure about it. It's to do with injecting bee venom. The clinician said he wouldn't charge us extr for this, so I don't think he's money-grabbing.

    Anyone heard of this?

    Husband, Nigel, diagnosed with ALS in July 2019. We live in Spain and the medical care is superb. Nigel currently taking Riluzole. Tried acupuncture/Chinese medicine and bee venom (privately), but not helpful. Had stem cell therapy 6 months ago, but no improvement so far.

    Hi Puddy

    I strongly suggest you discuss any alternative therapy with your MND Consultant before embarking on it.

    I hadn't heard of apitherapy, but Wikipedia suggests that the likelihood of adverse reactions is high.

    Take care.

    Diagnosed April 2017


      Hi Puddy,

      By "Clinician" do you mean the person doing Nigel's acupuncture?

      Anyway, bee venom therapy isn't proven to do anything.

      Trials were done on mice and, scaling up to humans, would need the therapy to deliver the equivalent of 70,000 bee stings 2x a week.

      ALSUntangled reviewed the therapy:

      Summary: don't bother, it's useless

      Love Ellie.
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.