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Acceptance and Commitment Therapy for people with MND (COMMEND)

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    Acceptance and Commitment Therapy for people with MND (COMMEND)

    The COMMEND study is currently looking for people with MND who would like to take part in a non-pharmacological clinical trial. They are looking at whether a new form of psychological therapy called Acceptance and Commitment Therapy (ACT) improves quality of life in people with motor neuron disease when compared to usual care.

    ACT focuses on helping people learn how to best live their lives, whilst coping with the difficulties they may be experiencing that are out of their control. Your interest and participation in the trial is very important to the team as it will help to inform MND services in the future.

    Who is invited to take part?

    People who:
    • are aged 18 and over, and
    • have a diagnosis of Amyotrophic Lateral Sclerosis, Progressive Muscular Atrophy or Primary Lateral Sclerosis, and
    • are receiving care from an MND Care Centre or Clinic that is listed: London (Royal London - Barts, UCLH, Kings College Hospitals), Sheffield, Northern Lincolnshire and Goole, South Wales, Newcastle, Plymouth, Leicestershire, Middlesbrough and Preston. It may also be possible to take part in the trial remotely if you do not receive care from the above care centres. Please contact the COMMEND team using the details below to discuss this.
    * Recruitment at Glasgow, Salford and Stoke will open soon and hoping to open for recruitment at other sites in the near future - please keep an eye on this website for updates.

    What would I need to do?

    If you are chosen at random to receive Acceptance and Commitment Therapy plus usual care then you will be offered up to 8 one-to-one sessions of this with a trained therapist over 4 months. Each session would last up to 1 hour, would be delivered remotely (via video call, telephone, post or online) from the comfort of your own home so that it is COVID-19 safe.

    You would also be invited to complete some questionnaires at baseline (0 months) and 6 months and 9 months later, so that we can see how helpful Acceptance and Commitment Therapy is and what kind of value for money it represents in comparison to standard treatment. These can be completed via online surveys, post, telephone or video call.

    Where do I find more information?

    To learn more about the trial, please visit our website: https://www.mndassociation.org/resea...tment-therapy/.

    To register your interest in the trial, please contact the COMMEND team at [email protected].
    Our working hours are Monday to Friday 8:30am until 5pm

    #2
    A gene test should be offered in conjunction in order to take away the uncertainty of a MND diagnosis.
    Copyright Graham

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      #3
      Only if a gene is responsible. It's like looking for a single grain of sand in the Sahara desert.
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

      Comment


        #4
        The science is far more advanced than you imagine Matt.
        Copyright Graham

        Comment


          #5
          Maybe but some symptoms will never be reversed and to give hope is cruel.
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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