Developing a bespoke neck collar for people living with MND
Muscle weakness is one of the key features of MND and head drop can result from weakness in the neck, shoulder girdle and long back extensor muscles. This can result in the use of head supports, such as neck collars, to help support the person living with MND. The aim of this study is to develop a bespoke neck collar with embedded sensors for patients with motor neurone disease, using 3D scanning and 3D printing. As part of this project, the research team hope’s to better understand how people living with MND experience using neck collars.
What does taking part involve?
Participants will be asked to fill out a survey on experiences with neck collars and their view on key features of collars (what’s good currently, missing). The survey should only take 5 minutes, and responses are completely anonymous.
Who can take part?
All participants must have access to the internet and able to complete online forms and questionnaires (or have someone who is able to support them to complete this). Participants can be UK-wide (remote).
How can I take part?
To take part, please click here, the page will then ask for a code. Please use the code:
Survey code: ‘43 67 74’
To find out more please click here. For any queries and more information, please email the study researcher, Sam Spears at [email protected]
Muscle weakness is one of the key features of MND and head drop can result from weakness in the neck, shoulder girdle and long back extensor muscles. This can result in the use of head supports, such as neck collars, to help support the person living with MND. The aim of this study is to develop a bespoke neck collar with embedded sensors for patients with motor neurone disease, using 3D scanning and 3D printing. As part of this project, the research team hope’s to better understand how people living with MND experience using neck collars.
What does taking part involve?
Participants will be asked to fill out a survey on experiences with neck collars and their view on key features of collars (what’s good currently, missing). The survey should only take 5 minutes, and responses are completely anonymous.
Who can take part?
- People living with MND: individuals with a confirmed diagnosis of MND
- Aged 18 – 85 years
- Suffering from neck weakness due to MND
- Use of a collar to treat neck weakness
All participants must have access to the internet and able to complete online forms and questionnaires (or have someone who is able to support them to complete this). Participants can be UK-wide (remote).
How can I take part?
To take part, please click here, the page will then ask for a code. Please use the code:
Survey code: ‘43 67 74’
To find out more please click here. For any queries and more information, please email the study researcher, Sam Spears at [email protected]
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