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Factor-MND: Factors affecting family carers in motor neurone disease

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    Factor-MND: Factors affecting family carers in motor neurone disease

    Factor-MND is a research project sponsored by the University of East Anglia looking to understand better how the experiences of being a family carer for someone living with MND impacts the carer’s wellbeing and how they manage emotionally the changes that MND might bring in their everyday life. This research aims to help us learn how to better support family carers of people living with MND.

    Who is invited to participate in this study?

    People that have a relative who has been diagnosed with Motor Neurone Disease (MND) are invited to participate in this study. Participation in this study is entirely voluntary. All data is anonymous in this study. No personal data will be taken. All information and data collected from you as part of this study is confidential and kept in compliance with the Data Protection Act (2018).

    What is this study for?

    We are interested in understanding what certain family factors may contribute to the carer’s wellbeing, such as family values and personal relationships, psychological flexibility, and potential changes in behaviour of the person with MND. This research aims to help us learn how to better support family carers of people with MND.

    What would I have to do?

    As a carer of someone with motor neurone disease, we are asking you to complete some questionnaires about your personal wellbeing, family, relationships, and your family member’s diagnosis of MND. There are 82 questions in total and they are mostly multiple choice, with some background questions. It is estimated this will take you 30 minutes. These can be completed online (via a web link) or via paper and pen format.

    How do I join the study?

    Either:
    Complete the online survey at: https://uea.onlinesurveys.ac.uk/factor-mnd

    Give us a call, or for more information contact us on 07825 863389
    Email us: [email protected]
    Our working hours are Monday to Friday 8:30am until 5pm
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