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  • Barry52
    replied
    Hi Myrtle and welcome to the forum.

    I see from one of your posts you have kindly offered a beach wheelchair. Most of our forum family are British. We do have a member from New Jersey who is pals with a cool cat from Suffolk and a cheeky monkey from Ireland.

    May I ask what is your connection with MND/ALS?

    Best wishes,
    Barry

    Leave a comment:


  • myrtle1990
    replied
    Good morning here!
    Who is from Washington?
    Feel free to contact me via PM.

    Leave a comment:


  • shrew
    replied
    Thanks Kayleigh Ellie and every single person on here fighting this cruel disease. Life is very difficult. I hope each day for a cure for you all. The disease seems to be rife around here, I seem to hear of more and more people affected. God Bless you all, keep fighting xx

    Leave a comment:


  • Kayleigh
    replied
    Dear Shrew and Wailywoo,

    You are both often in my thoughts and were especially at Christmas, which must have been a particularly difficult time.

    Every day I think about Dina and everyone in this forum family who are sadly no longer with us, including your lovely husbands.

    I am inspired by your husbands' fighting spirit and bravery and I try to be as brave as they were - but I am taking one day at a time, as I don't I have enough strength to do more than that.

    Life can be too cruel sometimes. I wish a cure could be found quickly so that MND can be stopped in its cruel and relentless path of destruction.

    Life must be extremely difficult without your beloved husbands. I don't have experience of what you are both going through but I hope that, in time, the extreme pain of your loss will ease considerably.

    Mick and Mr Wailywoo would be very proud of you both for continuing to help each other get through such a difficult time in your lives. I hope that by you both keeping in contact with each other it helps in some way, as you both have an empathy and understanding of how difficult your grief is to cope with.

    It is always lovely to hear from you both. Please stay in touch with us on the forum, if you would like to.

    Sending you both lots of love and hugs,

    Kayleigh x
    Last edited by Kayleigh; 29 January 2020, 22:38.

    Leave a comment:


  • Wailywoo
    replied
    Originally posted by Kayleigh View Post
    Hello Wailywoo and Shrew,

    I hope you are both well.

    Love and best wishes,
    Kayleigh x
    Hi Kayleigh,

    Thank you for asking. I am on a downer at the moment, but just taking one day at a time. It seems to be hanging around this time. I'm usually so strong, but struggling at the moment. Hoping things will ease with the passage of time. They haven't so far - nearly 4 months now. It is such an awful disease. Nobody deserves to go through it!

    I still come on here to have a look what's going on and am always shocked to see more new people logging on. I was so sad to read about Dina. I sobbed. She seemed such a lovely person, as do you all.

    With love and hugs to you all.

    Stay strong,

    Wailywoo x

    Leave a comment:


  • shrew
    replied
    Thanks everyone, rubbish with technology. Trying to take a day at a time Kayleigh, love and best wishes to everyone on here for all your support xx

    Leave a comment:


  • Kayleigh
    replied
    Hello Wailywoo and Shrew,

    I hope you are both well.

    Love and best wishes,
    Kayleigh x

    Leave a comment:


  • Wailywoo
    replied
    Thank you for all your replies. Much appreciated.

    Wailywoo x

    Leave a comment:


  • shrew
    replied
    ive deleted some now!

    Leave a comment:


  • Ellie
    replied
    If you're replying back and forth in the same PM, usually you need only keep the latest 'Sent' version.

    Messages have stored history - to see it click on 'View History' under the text box. See picture below, I've circled it in red (or kind of did, it's hard to with eye gaze )

    PM View History.jpg



    Love Ellie.

    Leave a comment:


  • Terry
    replied
    Hi Wailywoo,

    Do you know how to delete messages?

    I normally delete messages and then send a PM to the person saying sorry and I have more room

    Love Terry

    Leave a comment:


  • Doug Carpenter
    replied
    Don't worry Wallywoo.

    It's easy not to notice how quickly we can build up to the limit of 50 messages in our boxes.

    Don't forget, you can export them and save them if you want to before your delete them

    Doug

    Leave a comment:


  • Wailywoo
    started a topic Private messages

    Private messages

    Hi,

    I have been messaging privately with Shrew and it appears we are only allowed to save so many private messages. I received a PM from Shrew and can’t reply until some messages have been deleted. Sorry to use this forum to sent this, but couldn’t think of another way to let Shrew know....

    Wailywoo x
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