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    Hi, how can I edit/change my user profile name or at least display something more akin to my actual name?

    James
    Foxes Never Quit πŸ’™

    #2
    The only way I know is to edit your signature by adding in your name or whatever you would like to be known as. I don’t know if

    Admin_MND can edit your user name.

    Comment


      #3
      JamesW Yes, Admin can do it, it came up before.

      LCFC won't be best pleased πŸ˜‚πŸ˜‚
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
      .
      ​

      Comment


        #4
        Thanks folks
        Foxes Never Quit πŸ’™

        Comment


          #5
          Originally posted by Ellie View Post
          JamesW Yes, Admin can do it, it came up before.

          LCFC won't be best pleased πŸ˜‚πŸ˜‚
          The way we are playing at the moment I wouldn’t really be too bothered 🀣🀣🀣🀣
          Foxes Never Quit πŸ’™

          Comment


            #6
            This keeps coming up folks.
            If I recall, when new members are setting up their accounts we are actually advised to pick user names that are deliberately different from our real names. That may be the problem perhaps?
            I am likewise stuck with my Wheels Of Steel user name, but I put "Hi, I'm Eddie" in the signature tag that goes at the bottom of my posts.
            Hi, I'm Eddie.
            Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
            Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
            Still wondering what the future will bring.

            Comment


              #7
              WheelsOfSteel Most forums let you use a any name of your choice (within reason πŸ˜…) once you have set your main profile up
              Foxes Never Quit πŸ’™

              Comment


                #8
                JamesW You are quite right, but I believe members are advised to avoid using their real names in the process.
                Hi, I'm Eddie.
                Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
                Still wondering what the future will bring.

                Comment


                  #9
                  Originally posted by WheelsOfSteel View Post
                  I believe members are advised to avoid using their real names in the process.
                  I was happily posting under my pseudonym until Tabbycat outed me as Elsie 😏🀣🀣🀣
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
                  .
                  ​

                  Comment


                    #10
                    Hi all,

                    In our current Forum Guidelines we do encourage not to reveal personal information about yourself or anyone else on the forum (for example: telephone number, postal address, home address or email address or any other details including health professionals that would allow you or others to be personally identified) to protect everyone's privacy and we will remove any personal information that you disclose in an area on the forum which is visible to the public.

                    However if you're happy and have agreed to having your own personal information displayed publicly whether it's as part of your username or signature then of course that's up to you.

                    We're able to change anyone's usernames if they want to, just drop us a PM and we can action it. You just need to remember next time you sign in that you'll be using whatever you have chosen in future.

                    Hope that helps,

                    Forum Admin.
                    Our working hours are Monday to Friday 8:30am until 5pm

                    Comment


                      #11
                      JamesW A warm welcome to the forum James Dubya. I promise not to take the mickey out of you as much as I did your predecessor 😍😘😘
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
                      .
                      ​

                      Comment


                        #12
                        Originally posted by Ellie View Post
                        JamesW A warm welcome to the forum James Dubya. I promise not to take the mickey out of you as much as I did your predecessor 😍😘😘
                        Thanks Elsie ….. I will try not to make such an easy target as my former self….. The words candy and baby springs to mind 😘😘😘🀣🀣🀣
                        Foxes Never Quit πŸ’™

                        Comment


                          #13
                          Originally posted by Ellie View Post

                          I was happily posting under my pseudonym until Tabbycat outed me as Elsie 😏🀣🀣🀣
                          Sorry about blowing your cover Elsie πŸ€£πŸ€£πŸ˜‰

                          Welcome to the forum JamesW in your new incarnation.​​​​​​​
                          Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive 😺.

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