Hi I am Lee

[Faz]

I have just been recently diagnosed with MND literally last Thursday 2nd Feb. I am a-bit overwhelmed with all info I am being given.

be good to get other peoples take on it as I just can’t get my head round it.

Football is life was a game but no more.

😢😥😥

[michelleroberts]

Hi I was diagnosed last Thursday too - as of yet not overwhelmed with info etc which in a way is good as it gives time to process all the thoughts filling your brain - what symptoms do you have? Mine are mainly in my legs - started with foot drop and left leg bad with right one getting weaker, walking around house slowly with a walker but need wheelchair outdoors, take care x

[Zante]

Faz hi Lee. Welcome to the forum but am sorry you find yourself here.

It's very early days yet and you need time to process everything. It must have taken me a good 8 months to get my head around it all.

The support will soon all come thick and fast so just be prepared for quite a lot of different people and services coming to see u. Are u under an mnd clinic? Did they say what type of mnd you have? I don't know what area you are but many have specialist mnd clinics which will also provide some of the community care .

Don't know which footie club that badge is from?! Plenty of footie fans here too! Xx

[WheelsOfSteel]

Hiya Faz Welcome to the exclusive club nobody wants to be in.
The early days are a bit crazy as you digest the bad news and hear from the many specialists who will be handling your care going forward.
It can be a lot to get your head around, but please ask the community right here if you have any questions.
We are here to support each other.

[Arcadian]

Hi Faz / Lee, sorry to read that.
Hopefully you have access to a MND clinic with a multi-discipline support team, or experienced local medical practitioners?

Overwhelming is a natural response and unfortunately symptoms can be quite different across a range of people, as well as resources and support variable across the UK.
I found the MNDA Connect helpline particularly helpful, as well as asking for a few pamphlets through the post for friends and family.

[Ellie]

Faz A warm welcome to the forum, Lee, sorry you’ve had to join us. Now that you’ve taken the plunge and made that scary first post, you won’t be alone on the MND rollercoaster - you’ll find support, advce, tips, laughs and tears from people who know exactly what you're going through.

As for all that information you’ve been given, read and digest it at your own pace, even if that takes weeks and weeks, or not at all.

... be good to get other peoples take on it as I just can’t get my head round it.

Nobody gets their head around the diagnosis easily, Lee, it’s just too much but it does sink in over time. (I had counselling which really helped me.)

Yes, it’s horrible; yes, it’s life changing but it doesn't have to be life-defining.

Love Ellie xx

[Peter]

Hi lee welcome to the forum. Sorry to hear about your diagnosis. I still struggle at times to get my head around with what’s going on. I had lots of home visits within the first couple of weeks of being diagnosed but now starting to settle now as more things put in place. Hopefully your have a good support team where you are and you will get a lot on this forum.Looking forward to getting to know you more.

[SAMMY88]

Hi Lee , so sorry you have been diagnosed with mnd.

The first weeks/ months are so hard, you will go through many emotions.

I was diagnosed 6 months ago. I can remember someone on here saying they are still just about managing to walk after 10 years with mnd.

Wow I thought I'm gonna aim for that. Never give up hope. Many here have had mnd for years, still have very enjoyable lives x

[JamesW]

Hi Lee,
Really sorry that you find yourself here, but hopefully you will find us a helpful bunch 👍
Drop me a line any time you wanna talk football 😊
James

[Claireflo]

Hi Faz welcome to the forum. As everyone has said it is overwhelming at first but you find your way through. Theres lots of knowledge and support from this forum.

[Pauline H]

Hi Lee
Sorry you’re here, but welcome. I was diagnosed back last March and am still trying to get my head round it. I’m sure everyone has a different approach. Some people will want to know everything, others will prefer to take it a day at a time, facing the problems and find solutions, as they arise. Do whatever is best for you, but like others have said, I’ve certainly found that help and advice will come at you from every direction, so however you decide to tackle it, you won’t be alone.
I know I have been ‘lucky’ so far, in that mine has progressed reasonably slowly up to now compared with some others, so although I’m all too aware of what’s inevitably to come, I try to stay positive and focus on what I can still do, not what I can’t. Not easy, I know.
Good luck. I hope you get all the help, both professional and personal, you need.

[Tabbycat]

Welcome to the forum Faz it's a friendly place with sound advice, experience and good humour.

[Derbyram21]

Welcome to the forum sorry you find yourself here but lots of great support on here

[Olivia H]

Hi Lee. I reiterate what everyone has said, takes time to process the diagnosis but lots of first hand knowledge and support here. The 'why me' stage is very tough and you can continue to feel that for years, but also if you can adapt and concentrate instead on what you can do, and stay positive, that can make a big difference. 10+ years here and life still has lots of positives.

[Faz]

Faz A warm welcome to the forum, Lee, sorry you’ve had to join us. Now that you’ve taken the plunge and made that scary first post, you won’t be alone on the MND rollercoaster - you’ll find support, advce, tips, laughs and tears from people who know exactly what you're going through.

As for all that information you’ve been given, read and digest it at your own pace, even if that takes weeks and weeks, or not at all.


Nobody gets their head around the diagnosis easily, Lee, it’s just too much but it does sink in over time. (I had counselling which really helped me.)

Yes, it’s horrible; yes, it’s life changing but it doesn't have to be life-defining.

Love Ellie xx

Thank you. It’s my kids that I worry about they have distanced it’s very worrying.