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Quick hi & intro!

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  • Lynne K
    replied
    Hi Sarah, welcome. I'm sorry that you've had to join us on this horrid journey. Bad luck that it all happened shortly after your house move and new job. I hope that your new home is either already wheelchair friendly or will be easy to adapt. A wet-room and downstairs bedroom will help in the future.

    It's good that you're doing voice banking. Look for my previous posts and other contributors to this subject. That'd save me repeating myself and it's always good to bring old posts back to the top so that newbies can see them.

    It's a terrible shock for both of you getting your MND diagnosis but it sounds like you are proactive and fighting it.

    Good luck with your scooter search. Have you got a walker already?

    Hugs, Lynne.

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  • shrew
    replied
    Welcome Sarah. My name is Sheila. Sadly I lost my Husband Mick to MND Jul 3rd at 59. I still check in most days to see how everyone is. We bought a scooter for Mick , a gogi go I think its called. He only used it four times, they are very good though . He banked his voice. There is lots of support, its early days . Take care x

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  • SarahWP
    started a topic Quick hi & intro!

    Quick hi & intro!

    Hi all. I’m Sarah, aged 50 & recently diagnosed. I live with my wife Sue & our 2 cockapoos & 2 cats just outside Cardiff. We had only recently moved to a lovely new house in the country, & I’d just secured the job I wanted - everything had fallen into place perfectly - when this happened. Typical! Obviously we’ve been through some dark times adjusting since diagnosis a month or so ago, but are now focusing on remaining as positive as possible. My wife is being amazing - I genuinely hate what this is doing to her as much as it is to me, if not more so,

    I’m still walking but only just so am being provided with a wheelchair but I also want to get a 2nd hand mobility scooter. My speech is rapidly deteriorating too & I think I find this the most distressing of all as I don’t sound like me any more. And I get really embarrassed when out & about if I have to speak to people - even if it’s just at the till in the supermarket. I’m currently doing voice banking but even so, the loss of speech is what I’m finding hardest to come to terms with.

    Anyway, that’s me. If anyone has any hints or tips re mobility scooters or dealing with the speech thing, that would be great but really I just wanted to say hi! 😊 Oh & if anyone knows any positive/inspiring stories I’d love to be pointed in their direction too - those definitely help me the most! Thanks all. Xx
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