Hi

[Gillette]

Hi Serenity,

It can feel overwhelming when your home starts being visited by what seems like a never-ending troupe of healthcare professionals. If you're unsure what they do or what to expect from them, just ask. Ask them whatever you want or need to: it may not feel like it, but they are there to help you both. As for the OT, he or she could be the most useful member of your husband's community healthcare team. If there's a problem, the OT should be able to help get it sorted.

[Serenity]

Hi Deb,
thank you for your warm and huggy welcome sending warm huggys back, yes since contacting the hospital the social worker has started organising people to visit us. lol i am even scared about that, I really don't know is if I will ever come to terms with this. I seem to have infinite tears lol
again thanks for the hugs...it really helps knowing people care
Serenity

Dina,
I would love to ask questions but I feel like I dont know what to ask. I just wish I could wake up and find out this was just a bad bad dream.,
sending love and hugs
Serenity

[Gillette]

Dina,
I would love to ask questions but I feel like I dont know what to ask. I just wish I could wake up and find out this was just a bad bad dream.,
sending love and hugs
Serenity

Try not to worry about what questions you should ask. Here are some basic pointers for you:
Name
Job title and what it means
What they can do for your husband and you
Contact details for when you need them
Their working hours (in case they are part-time).

It might be a good idea to have a notebook where you keep information about MND so that you only have to look in one place to find information

If or when your husband needs help or equipment, ask the Occupational Therapist or Physiotherapist first. You can easily end up spending a lot of money and buying equipment that isn't really appropriate for his needs.

I hope the above helps, Serenity. In the meantime, lots of hugs from me, too.

[Serenity]

OMG Dina that helps more than you can know. you are wonderful...hugs you back.

[Gillette]

Serenity, I simply looked back to when I was first diagnosed and how it felt having all these people passing through. I am very fortunate as I have a terrific community team, who liaise with my MND clinic and both those teams work closely with tbe ventilation unit where I am currently imprisoned! I sincerely hppe you and your husband will cope well with all of these visitors. Please don’t forget that we are here to help and support you both, should you need us.

Sending more hugs as you can never have too many! ((((()))))