New

[Ellie]

See the row of icons, the click on the square one, choose file and upload pic.

If you can't Jo Jo, don't stress yourself out over it!!

It sounds fine.

Love Ellie.

[Jo jo]

It has 4 wheels, brakes and a storage seat

[Jo jo]

How do I add a photo

[Ellie]

Can you post a pic of it Jo Jo before you spend your 40 quid??

[Jo jo]

Thankyou everyone I have managed to find one on Facebook as new 40 pounds so I’m collecting it later. You are all such lovely helpful people especially when I have no one else to ask. He could have caused himself a nasty injury. Luckily just bruised his chest. People must hurt themselves with falls. I’m only 4ft 11 so couldn’t lift him up. Luckily people came to help him up as it seemed to take his energy. Thanks again to you all xx

[Gillette]

Hi all, my partner has had his first fall today. Absolutely heartbreaking. He’s using crutches but he’s finding it hard to lift his right leg as his foot folds under and trips him up. First OT appointment on the 18th Dec. He was only diagnosed in October it seems to be rapidly disabling him. Does this usually mean he will loose use of his arms then his breathing this is so scary.

Hi Jojo,

One of the things that make MND so hard to cope with is that there is no “usual “. Everybody’s MND journey is different, which is why it’s so hard to anticipate what is likely to happen next, and when. The best you can do is react to changes sooner rather than later, including asking for help. Try to get a picture of what each healthcare professional’s role is, it will help you to know who is the best person to ask for help.

[Barry52]

Hi JoJo,

I agree with Lynne and we often leave it too late to move onto the next piece of equipment to make us safer. If the OT won’t offer a 4 wheel walker you can buy a good one for around £100 or ask for a grant from MNDA.

Best wishes,
Barry

[Jo jo]

Thanks Lynne I will ask them on the 18th when they come.

[Lynne K]

Hi Jo Jo. I'm sorry about your partners fall. There's straps (not the correct term but descriptive enough) that can help with foot drops. I think that your partner needs to move on from crutches to a walker. Four wheeled ones are more stable but it depends on what the OT orders.

Take care, Lynne

[Jo jo]

Hi all, my partner has had his first fall today. Absolutely heartbreaking. He’s using crutches but he’s finding it hard to lift his right leg as his foot folds under and trips him up. First OT appointment on the 18th Dec. He was only diagnosed in October it seems to be rapidly disabling him. Does this usually mean he will loose use of his arms then his breathing this is so scary.

[Kayleigh]

Hello Jo Jo,

It's good that, at last, the first appointment with an OT has been arranged.

Hopefully you will be contacted about other appointments soon.
There might be a few other specialists working in the same Community Team as your partner's OT e.g. a physiotherapist, dietitian and speech & language therapist (but your local Regional Care Development Adviser should know).

Was it your local Regional Care Development Adviser who was supposed to phone you on Monday? I expect it would be ok for you to make contact with him or her, if you would like to. Links to contact details for all the Advisers are provided at the end of the following webpage:-

http://https://www.mndassociation.org/support-and-information/local-support/mnd-regional-care-development-advisers/

Best wishes
Kayleigh x

[Jo jo]

Received a call today from an OT to book first appointment still no news from anyone else they said we would get a call on Monday just gone. O well atleast something is happening now.

[Jo jo]

Thankyou Kayleigh all the best to you xx

[Kayleigh]

Thanks for the update Jo Jo. I'm glad someone is going to phone you on Monday and hopefully that person will be able to chase up the appointments for you.

Best wishes to you and your husband,
Kayleigh x

[Jo jo]

I have just spoken to a lovely lady on that contact number and she is going to get someone to call me on Monday. She said we should have heard something by now from the team. Thankyou for the advice.