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  • Jo jo
    replied
    What is voice banking

    Leave a comment:


  • Ellie
    replied
    Hi JoJo and welcome to the Forum.

    Sorry about your partner's diagnosis.

    As time goes on, please feel free to ask or answer any questions, or just to share any worries or fears you may have.

    Love Ellie.

    Leave a comment:


  • Kayleigh
    replied
    Hello JoJo and welcome.

    I'm sorry about your partner's diagnosis.

    Understandably, you have both got a lot to come to terms with but you have come to the right place for friendly support and advice.

    I'm not surprised you are both feeling scared. I felt that way when I was diagnosed and I also felt quite isolated. I found it helped to talk things through with my local MNDA Adviser who was able to let me know about the ongoing support available for me and my family, not only from the MNDA but also from local healthcare professionals.

    If you would like someone talk to, I recommend giving the MNDA helpline a call. The helpline Advisers are very friendly and have an understanding of what we are going through and, if you wish, will also ask your local Adviser to contact you.

    Sometimes it takes a little while from being diagnosed to recieving our first appointments with healthcare professionals (such as MND Nurse, OT, speech & language therapist etc) but hopefully your partner will start getting help and support from them very soon.

    Please feel welcome to ask questions as often as you would like to.

    Best wishes to you and your partner,

    Kayleigh

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  • mickmac
    replied
    Hi JoJo

    Welcome to the forum. I'm sorry to hear about your partner and the diagnosis with mnd. I'd encourage you to ask any questions about your experiences so far. Also there is a forum for carers where you can post your questions or just blow off some steam. Best of luck with the future.

    Mick.

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  • Barry52
    replied
    Hello Jo Jo and welcome.

    Sorry to hear that your partner has been diagnosed and of course you must be both worried about the future. You will find support and advice from our family forum members so don’t be afraid to ask for help,

    If you have a key subject of interest then type a word into the search the forum box and you will find past discussions on the issue.

    Best wishes ,
    Barry

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  • Lynne K
    replied
    Hi Jo Jo. I'm very sorry about your partners recent diagnosis. It must be a huge shock for you both.

    You have found a great place for sharing tips, for the giving and receiving of support and a non judgemental space to say whatever you want.

    If you have specific questions ask away. Somebody or other is likely to offer a helpful response.

    Nobody's MND journey is the same. But some things that most of us have experience of.

    I hope that your partner has a Neurologist to see regularly, will soon have an as Occupational Therapist, a Speech Therapist and Physio.

    You could also ring the MNDA Helpline. They could offer advice, information and sign posting to other services. In the mean time there's lots of information on the MND pages.

    It's a good idea for your partner to start on voice banking whilst she/he has a strong voice. Please search messages about this. There's lots of discussion and names of relevant software.

    Take care, Lynne
    Last edited by Lynne K; 14 October 2019, 08:51.

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  • Jo jo
    started a topic New

    New

    Hi my partner has just been diagnosed and we don’t know anything about what’s going to happen. We are both so scared
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