Help needed

[anxious1]

Have I cause for concern? I previously posted under the heading ‘im terrified’ and you kindly replied to reassure me. My twitching has intensified, mostly on my calfs and occasionally in my arms. I took a video and showed it to my doc who has referred me to neurologist. If they see me as urgent, i shall be there within 6 weeks. If not withing ten months. My feelings of weakness in my hands and feet has improved and its like im now obsessing over the twitches. The heel of my left foot is a bit sore and today my neck is quite sore. Over the weekend, my hamstrings were tight as well as twitching a wee bit. Totally sick of this tbh.

X

X

[MNDConnect]

Hi anxious

I'm sorry to hear that this is still worrying you. Again, nothing that you have described would be considered a normal, typical presentation of motor neurone disease. Whilst people talk about "weakness" with MND, this isn't usually described as a feeling of weakness. It is an actual, physical weakness which can be measured and observed rather than a feeling.

Twitches are not a typical initial symptom of MND. They are usually caused by anxiety. If you obsess over the twitches then they will continue.

MND would not normally cause pain in the foot or neck.

Have you spoken to your GP about treatment for anxiety? If your symptoms are being caused by your anxiety, this is a medical condition which your GP should be treating. If your anxiety was under control then you may see an improvement in the way that you feel.

Best Wishes
Rachel
MND Connect Adviser

[Kayleigh]

Hello Anxious,

Understandably, you are finding it stressful and worrying, not yet having a diagnosis for your symptoms. The MNDA provide information on their website for anyone who is worried that they might have MND:-

Link to MNDA webpage 'Have I got MND'?:-
http://https://www.mndassociation.org/about-mnd/what-is-mnd/have-i-got-mnd/

Best wishes,
Kayleigh

[anxious1]

Thanks Rachel. I have seen my GP about this and she has been fantastic. She has prescribed me anxiety medicine but obviously being in the first few days, this can take a wee while to manifest in my system and begin to lessen things. I managed to take a video of some of the twitching which she agreed would be best to refer to neurology hopefully for peace of mind.

I have today had bloods taken to check other routine things. the problem is the contradictory information online (I know I shouldn't check) where some reasonably astute looking academic pieces have described twitches as possible initial signs.

Am I correct in thinking that ordinarily the twitches would present after obvious atrophy and weakening of the muscle so what I am worried about is in actual fact the last thing to happen to the muscle happening 1st? For example, would someone be likely more have obvious weakening in a leg impacting on its normal function which in turn would lead to twitching?

i must confess I do someone who passed away around my age to this horrendous disease and that could be playing a big part in my worry.

Thank you Rachel.

[anxious1]

Thank you Kayleigh. I am a born worrier unfortunately.

xx

[Sheila]

I am a born worrier as Well. But unfortunately I have Mnd. So somehow I have to deal with both things.
I hope you get sorted and everything is ok.

[MNDConnect]

Hi anxious

It is really difficult when you've lost someone with MND, to not worry about symptoms. It's completely normal to do so.

However, we've spoken quite a few times and nothing you've ever described would suggest MND.

It's easy for me to say and I know that it is really hard to do but I think you really need to try to stop worrying about MND. Please don't let a disease that you don't have the symptoms of, take over your life.

Do give us a ring on 0808 802 6262 if you'd like to talk through your concerns again.

Best Wishes

Rachel
MND Connect Adviser

[Guest]

Look up fasciculations for yourself on the Internet ,it is possible for them to be visible because of stress or a virus like flu or one of the motor neurone diseases ,I get them a lot but I suffer from panic disorder.

[TAPG1]

Hello Anxious1, I feel exactly like you and have the same symptoms, it's very frightening and the more l think about it the worst lm getting. I really hope your ok xx. I had a neurological exam which was unremarkable normal so don't know where to go from here�� l didn't have an EMG as that has to be done elsewhere...What other symptoms do you have and can l ask your age? I'm 46yr female and am worried sick...l also have terrible retching in the mornings it's like morning sickness and can sometimes sweat. I wish you all the best.

[anxious1]

Hi there. I am sorry that you have been worried to x. I am a 45 year old male. Sorry I took so long to get back. I have just had my yearly visit from the novovirus and have been out the game the last few days. The previous replies on this thread I have reread a few times when revisiting worry mode and when I really think rationally I hope I am confident we are both ok. Oddly enough as I have been off work sick for two days, the constant cups of tea that me and colleagues get each other all day long obviously havent been there and Its to early to say for definite but I think my twitching has decreased since my caffeine intake has plummeted.

I have also been a bit worried at overtaking this forum with my worries given these incredibly brave, inspiring people’s back stories. The level of spirit in adversity makes me appreciate everything I have and I felt a fraud in comparison.

I have an mri in a week. I know this doesnt prove or disprove mnd and I think my gp was more concerned about ms. I hope I have got myself into a big stressball about nothing. If the MRI says nothing I will resolve to put it out my mind.

Although I felt weak I dont have any loss of strength and my malaise of a few weeks ago has gone. Your early morning wretching to me sounds like your body reawakening to another perceived daily threat of anxiety and its a fight or flight response.

Please try not to worry and best of luck xx

[TAPG1]

Anxious1, Its good to hear your feeling a little bit better. l hope all goes well for you and l wish you the best x

[Gillette]

Hi anxious1,

Please don't feel guilty or worried about posting on the forum. Yes, we know about this bl**dy disease and many of us do have it, but I hope we are not blind or deaf to the suffering of those who are worried that they may have it.

I have my mangled fingers crossed that neither you nor TAPG1 actually have MND.

[Sheila]

Hi anxious and tango
Yes we know about this bl**dy disease all right. It's in my head 24/7.
Good luck.