Jordan farrell

[Terry]

You left out the important bit of the quote !!! The after 13 years of learning bit...

Love ya.

Hi Chimp;

Did I leave that out intentionally?

I've had ten years of learning about Mnd, and I still know nothing.

Love TC

[Ellie]

You left out the important bit of the quote !!! The after 13 years of learning bit...

I wasn't born with this knowledge

Love ya.

[Terry]

I know more about MND than many a healthcare professional I’ve met.

Love Ellie.

Chimp;

Make sure your head will fit through the doorway. LOL

Sorry, I just couldn't resist that.

I reckon you know more about Mnd than some specialists that I have met as well. Live long and prosper, sweetie.

Love The Cat

[Ellie]

Jordan, I posted this on a different thread, but it is fitting for you also. I mean it in a helpful way only, not in any way dismissive.

What worries me about your situation is that you’re so focused on MND being the only possible reason for your symptoms, that you’ve fallen down a rabbit hole from which it’s very difficult to climb out. You can only perceive you must have MND and that perception has become your reality - that’s a very frightening place to be

But, by continuing to seek advice only on MND, you’re neglecting your mental health, which is as important as your physical health. I’d love you to concentrate on reducing your crippling anxieties, which are consuming your life right now, rather than posting on this Forum and be able to enjoy life. If you could get continuing help for your anxieties and get control of your mental health, it would improve your life immeasurably.

I have lived with MND/ALS for 13 years now and have learned such a lot about the disease and from the disease over time and, whilst I’m not an expert in any shape or form, I find that I often know more about MND than many a healthcare professional I’ve met.

Genuinely, I wish you well in seeking and finding treatment.

Love Ellie.

[JFarrell96]

Hello terry thank you very much for your reply, I’m just very scared with me being 23 and never experienced things like this before I’m just scared it is something serious, I do thank you so much for your time in replying to me terry

[Terry]

Hi Jordan,

I don't think that you have Mnd mainly because of the rapid way you developed symptoms after a mental trauma. Limb onset normally shows up in one limb end first and then can appear in the other limb or in the same side other arm/leg. If it was bulbar onset you would not have the other problems first. It is also very unusual to get twitching in many places and so quickly.

I do believe that your doctor is right in you not having Mnd but has a poor bedside manner.

Do try to relax and maybe listen to some of the links to meditation bedtime stories.

Love Terry

[JFarrell96]

Hello hope people are doing well, I’m still very upset and worried thinking I’ve got MND I’m getting what feels like cramp feeling in my forearms my thumbs keep getting cramp and feel stiff I have muscle twitches everywhere legs back belly neck throat tongue eye lids cheeks everywhere, I’m currently obsessing over checking my muscles to see if they still feel hard and start getting myself into a lot of panic when they feel soft or don’t feel as muscular, when I’m going asleep I keep jolting awake thinking I’m not breathing properly I have had some swallowing difficulties but I don’t know if that’s because I keep focusing on my swallowing, I’m really scared I’ve spoken to my GP and he said it’s all my anxiety but I’m really scared to the point I feel physically sick I can’t rest or relax, sorry again for being a pain and a headache

[Barry52]

Hi JFarrell,

Please don’t concern yourself. Even if you are diagnosed with MND like many of us on this forum you will find support and advice on how to cope. Diagnosis comes as a huge shock but the most important thing is how you deal with life afterwards. I know that some people don’t want to accept the disease and they hide away but everyone on this forum is positive and all the people I meet through the branch meetings are similar.

I do hope you find that your symptoms are not MND but you can be sure of support from this community.

Best wishes,
Barry

[JFarrell96]

Hello sorry to be a pain to everyone, I’m worried sick crying uncontrollably if anyone can help and give me some advice I would much appreciate it I’m scared I fact terrified I keep thinking I’ve got MND it is very scary, i just wanted to know in the time frame of me having all these symptoms is it happening too rapidly to be MND it’s been about 8/9 weeks since I had my panic attack but since then I’ve had muscle twitches difficulty swallowing I feel I get out of breath easy my thumbs seem to get stiff and feel heavy mainly in the right thumb, my legs feel strange mainly at my knees but I’m worried sick overthinking I tried speaking to my GP and he just says you haven’t got MND and when I have asked for a referral (yesterday) he said no, I’m genuinely scared sorry again for being such a headache to people

[JFarrell96]

Hello mate, thank you for your reply I know that’s the worst thing I’ve done is google my symptoms as I’m not medically trained I should not be self diagnosing, It’s so scary to have these physical symptoms and already seeing on google that these symptoms are also symptoms of MND is scary because I can sit there and tell myself I’m okay but something in the back of my mind still niggles away at me it’s hard to stop thinking about these things, I spoke with a GP from my GP’s practice on the phone today she’s gonna book me to have a muscle conduction test and she referred me to a neurologist for peace of mind, I’m also on 45MG mirtazapine anti depressants when I told this GP she instantly said that is to high for your age and it was a quick jump in dose I went from 15,30 to 45 in the space of 3 weeks, I feel these haven’t helped at all, I hope all goes well with your MRI mate, keep me posted on how you get on would be good to hear

[anxious1]

Hi Jordan. Just an attempt to reassure you mate. This could have been written by me. I have posted a couple of times citing similar symptoms to you. I have 3 young sons and found myself crying uncontrollably as well convincing myself I had this dreadful disease. I felt weakened and lethargy like never felt before as well as other potential symptoms that I connected toy self diagnosis. Being an anxious person like you I forced myself to stop googling and have began to feel better. I was at my docs today who now feels it was all angst based although she agreed what I was describing merited further investigation and I do have an mri next week to check generally which I understand doesn’t check for mmd.

Please realise that I was equally as anxious as you and was visualising my demise and my kids fatherless and I think you sound in a similar position.

Take care.

[Sheila]

Hi Jordan and for your kind words. I am sure you will be fine, try and take one day at a time. Sometimes I think all the nerves I have had, anxiety, panic attacks have given me mnd I don't know, but it makes me wonder.
Take care and let us know how you get on.
Sheila

[JFarrell96]

I’m so sorry you suffer with anxiety and panic attacks and you have MND as well! My heart goes out to you, I’m just worried sick thinking I might have MND I just keep looking at my son and my pregnant partner and cry all the time, I was told MND at my age is extremely rare and it’s very uncommon, I do apologise Sheila my heart goes out to you so much!!

[Sheila]

I know I suffer with anxiety and panic attacks as Well. Now with Mnd on top, it is very hard to cope. My husband and son try and help me so much.
Sheila

[JFarrell96]

Thank you for your reply Gillette, I know I had a breakdown last night crying uncontrollably because these symptoms are scaring me and I’m genuinely scared I’ve got that bad emotionally I have had to leave staying in my house with my partner and child because I keep getting worked up and upset, I’m just very scared