Hi All, I've just joined the forum. I was diagnosed with MND on 7th September. Waiting for appointment at King's College. I knew noting about MND till now. Dealing with the initial shock and uncertainty of what to expect. I'm 52, Irish, Living in Kent for almost 30 years. Looking forward to sharing some thoughts and experiences.
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Hi Aidan
a warm welcome, and sorry you have had to join us
you will find this forum a valuable resource, with many friendly and knowledgable members
Can i recommend you join your local MND Association support group
all the best
PaulAlways happy, why moan when you can smile
(Paul in London) -
A warm welcome to the forum Aidan, or should I say céad mile fáilte 😉, sorry you’ve had to join us.
Are you attending King’s MND Clinic from now on or are you going for a consultation, getting benchmarking tests and returning to the hospital where you were diagnosed? Do you know which type of MND you have?
Community support is important too so you’ll need referrals from King’s/local hospital, which should happen as a matter of course but sometimes needs to be chased up.
Love Ellie xx
Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Thanks Paul I will take a look locally. Thanks Ellie for the warm welcome. I don't yet know which type of MND I have. Current symptoms are right leg calve muscle and right arm, loss of power and movement. Hoping Kings will give me answers and support me moving forward.Comment
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Hiya Aidan Welcome to our happy band of chatterers. Help is only a keyboard away.ALS - Diagnosed 15/05/23. Limb onset - Nov 2019 - Hand. Overnight & some daytime NIV. Fulltime powerchair. Trying to stay positive.Comment
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Hello Aidan. Sorry you have had to join us but welcome.
You will find a lot of advice and support here. xxBulbar onset diagnosed Nov 21. No speech, feeding tube, limbs getting weaker but still just about mobile.Comment
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Thanks Geoff, good to still have keyboard skillsComment
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Always happy, why moan when you can smile
(Paul in London)Comment
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Hi Aidan, sorry you have had to join us here, but hope that you find friendship and support.
JamesFoxes Never Quit 💙Comment
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Welcome to the forum Aidan. I hope you get more clarity on your MND soon xDiagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!Comment
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A warm welcome to the forum Aidan.
I'm so sorry for your diagnosis. The early days are so overwhelming but hopefully you'll find friendship and support on here.
Take care of yourself,
Love Debbie xComment
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