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saying hello. Bit lost.

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  • Terry
    replied
    Hi B and a warm welcome to the forum,

    It's good to hear that your dad knows technology and it is important for many of us.

    It's always good to get out if possible.

    Please feel free to ask any questions or share things with us.

    Best wishes, Terry

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  • Ellie
    replied
    B, his local hospice might offer him counselling, as well as providing other services not only for your dad, but for the family too.

    And please don't think of hospices as just places to go for end-of-life care - they are committed to helping people with life-limiting illnesses to get the most out of life.

    Love Ellie.

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  • benaldo
    replied
    hi ellie -thank you for the reply. He's had two appointments at the clinic, talking to specialists. I don't think he's had the community services appt yet. He needs counselling, which I'll try and talk to him about soon. But I think the NHS will only give him 6 sessions?
    We have some trips and breaks planned, but my fear is that he's unrealistic about what's happening, what he needs to do, such is his enthusiasm for life to carry on as 'normal'.

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  • Ellie
    replied
    Hi B and a warm welcome to the Forum.

    So sorry for your dad's diagnosis.

    I guess we all deal differently with the bombshell of the diagnosis of MND - some people dive right in and start ticking off their Bucket List, others continue life as before - there isn't a right way or a wrong way to deal with it. If your dad was a home bird before his diagnosis, it's likely he'll stay so now.

    Of course that's not to say his family can't organise and faciltate outings or a mini-break!!

    Has he had any appts yet with a specialist MND Clinic and community services yet?

    Best wishes.

    Love Ellie.

    PS. And nothing in your post was "nonsense", B...

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  • benaldo
    started a topic saying hello. Bit lost.

    saying hello. Bit lost.

    Hello. I'm new to the forum, and to MND - I don't have it, but my dad does. Diagnosis was about a month or two ago. I'm just hoping he'll be brave and look it in the eye. Only because I think that'll help him feel less afraid, to enjoy life more now, to be able to understand that he needs help (and already), and to not feel ashamed to reach out and ask. Also to own the situation, rather than be defined by it. That's probably just nonsense from me thouhg. How can I understand what he really wants or needs.
    My sister's being great getting lots of information about what needs to be done. And dad's partner is clearing many of her projects and plans aside to be more available.
    Anyway. I mustn't say too much.
    B
    Last edited by benaldo; 20 February 2020, 17:47.
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