Hi All,
It has been a while since Ive been on the forum.(Hi..to old friends on here) what a rollercoaster I'm on!! It started out that I had FTD with MND, then because one conslultant said he could see some signs of MND but would wait till more became apparent. So then the powers that be pulled all help for now.
since then about 2018ish my symptoms have got worse.. I walk with a stick, unable to walk any distance, get out of breath. Also, noticed muscle wastage in my forearms,legs and hands.. cramps and stiffness... So again take myself off to GP she also saw wastage and loss of tone.. unable to keep my stomach from falling..have no muscles to hold it up or in!!! getting so tired.
Well, the GP is referring me to a specialist in MND, as a urgent request.
I feel this is MND so it won't come as too much of a shock... IF NOT, I just need answers the Dementia is tough but I can't stop that progressing, But the loss of my muscles, stiff joints, unable to turn in bed as I have no energy, it'shard.. the not knowing is as much of a problem.
Anyway, moan over.. will let you know where I'm at after appointment
Love to all
Chebs xx
It has been a while since Ive been on the forum.(Hi..to old friends on here) what a rollercoaster I'm on!! It started out that I had FTD with MND, then because one conslultant said he could see some signs of MND but would wait till more became apparent. So then the powers that be pulled all help for now.
since then about 2018ish my symptoms have got worse.. I walk with a stick, unable to walk any distance, get out of breath. Also, noticed muscle wastage in my forearms,legs and hands.. cramps and stiffness... So again take myself off to GP she also saw wastage and loss of tone.. unable to keep my stomach from falling..have no muscles to hold it up or in!!! getting so tired.
Well, the GP is referring me to a specialist in MND, as a urgent request.
I feel this is MND so it won't come as too much of a shock... IF NOT, I just need answers the Dementia is tough but I can't stop that progressing, But the loss of my muscles, stiff joints, unable to turn in bed as I have no energy, it'shard.. the not knowing is as much of a problem.
Anyway, moan over.. will let you know where I'm at after appointment
Love to all
Chebs xx
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