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I'm finding things hard..does anyone listen???

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    I'm finding things hard..does anyone listen???

    Hi All,
    It has been a while since Ive been on the forum.( old friends on here) what a rollercoaster I'm on!! It started out that I had FTD with MND, then because one conslultant said he could see some signs of MND but would wait till more became apparent. So then the powers that be pulled all help for now.
    since then about 2018ish my symptoms have got worse.. I walk with a stick, unable to walk any distance, get out of breath. Also, noticed muscle wastage in my forearms,legs and hands.. cramps and stiffness... So again take myself off to GP she also saw wastage and loss of tone.. unable to keep my stomach from falling..have no muscles to hold it up or in!!! getting so tired.
    Well, the GP is referring me to a specialist in MND, as a urgent request.
    I feel this is MND so it won't come as too much of a shock... IF NOT, I just need answers the Dementia is tough but I can't stop that progressing, But the loss of my muscles, stiff joints, unable to turn in bed as I have no energy, it'shard.. the not knowing is as much of a problem.
    Anyway, moan over.. will let you know where I'm at after appointment
    Love to all
    Chebs xx

    Hi Chebs,

    I have missed you but hoped that you were clear.

    I do hope it's something else.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.


      Hi Terry,

      Lovely to hear from you, Hope your well as can be expected.
      I too hope it's something else, will keep you informed

      Love Chebs x


        Praying for you my friend! X