No announcement yet.

New to site

  • Filter
  • Time
  • Show
Clear All
new posts

    New to site

    Hi my name is Jeremy and I was diagnosed with motor neurone disease on 22nd December 2019 (what a great Christmas) just wanted to say high to everyone xx

    Hi Jerry and welcome to the forum,

    Sorry to hear about your diagnoses and please tell us more when you can.

    Best wishes, Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.


      Welcome Jerry,

      There isn’t a good time to hear that diagnosis and I’m sorry it spoiled your Christmas but you can be sure that all our friends on this forum are here to support you on the journey.

      Best wishes,
      I’m going to do this even if it kills me!


        Hi Jeremy,
        Sorry to hear about your diagnosis and hope you are doing ok.Ive been diagnosed with MND this January one day before my 39 birthday.
        I have started meditation and its keeping me grounded a bit as I was going crazy from worry and stress.
        Lots of love xx


          Hi Jeremy and a warm welcome to the Forum.

          Love Ellie.
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


            Hi Jeremy,

            A warm welcome from me to the forum although I am obviously so sorry for your diagnosis.

            The forum is a valuable place for support, advice and friendship.

            Take Care and look after yourself,
            Love Debbie


              Hello Jerry
              Sorry you've had to join but I have found lots of help and hints and tips on this forum from people who know what you are going through
              As long as there’s golf and beer I’m happy