Hi everyone
First of all can I say that this forum has helped me get through the last 3 weeks,it has been so helpful to read about useful information and some posts have really made me laugh.
Like many others it has taken some time (6 months) to get to the route cause of walking like a robot that has short circuited from the waist down!!!! Neurologist says it is PLS taking Gapapentin (which is controlling the leg spasms and Rluzole.
Currently toddling around on a zimmer, stairs - well - like facing a mountaineering challenge but stair lift in 3 weeks (fingers crossed)
All this happening just before lockdown has caused a few issues as far as trying to sort out equipment without the ability of actually seeing and trying out stuff and OT reluctant to visit for obvious reasons
Can i ask for some advise regarding help with sleeping
My husband and I were looking at adjustable profile beds on the www it's a very expensive mine field!!!!
My issue is that i am unable to turn over, slide off my pillows down the bed which causes my back to lock, and arms starting to feel stiff and weak - can anyone please let me know if profile beds help and perhaps point me in the right direction.
Have hired a travel mobility scooter for a month to try it out - fantastic to get out in this great weather but it is a bone shaker - any advice on these greatly appreciated - are foldable electric wheelchairs better?
I have googgled rise and recline sofa's - not much luck?? I am unable to stand unaided from a sitting position and slightly concerned hubby may do himself a mischief!!!!
I would also like to record my voice for if/when the time comes - can anyone advise?
Sorry to ask so many questions but determined to try and get stuff sorted so that hubby and I can make the most of every day and stay very positive adapt and ENJOY
Any help and advice very welcome
Take care and keep smiling
Yesterday is not ours to recover, but tomorrow is ours to win or lose.
Diddly xx
First of all can I say that this forum has helped me get through the last 3 weeks,it has been so helpful to read about useful information and some posts have really made me laugh.
Like many others it has taken some time (6 months) to get to the route cause of walking like a robot that has short circuited from the waist down!!!! Neurologist says it is PLS taking Gapapentin (which is controlling the leg spasms and Rluzole.
Currently toddling around on a zimmer, stairs - well - like facing a mountaineering challenge but stair lift in 3 weeks (fingers crossed)
All this happening just before lockdown has caused a few issues as far as trying to sort out equipment without the ability of actually seeing and trying out stuff and OT reluctant to visit for obvious reasons
Can i ask for some advise regarding help with sleeping
My husband and I were looking at adjustable profile beds on the www it's a very expensive mine field!!!!
My issue is that i am unable to turn over, slide off my pillows down the bed which causes my back to lock, and arms starting to feel stiff and weak - can anyone please let me know if profile beds help and perhaps point me in the right direction.
Have hired a travel mobility scooter for a month to try it out - fantastic to get out in this great weather but it is a bone shaker - any advice on these greatly appreciated - are foldable electric wheelchairs better?
I have googgled rise and recline sofa's - not much luck?? I am unable to stand unaided from a sitting position and slightly concerned hubby may do himself a mischief!!!!
I would also like to record my voice for if/when the time comes - can anyone advise?
Sorry to ask so many questions but determined to try and get stuff sorted so that hubby and I can make the most of every day and stay very positive adapt and ENJOY
Any help and advice very welcome
Take care and keep smiling
Yesterday is not ours to recover, but tomorrow is ours to win or lose.
Diddly xx
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