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Hip pain

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    Hip pain

    Hello everyone,

    I was diagnosed with MND in October 2017. At a later stage my Consultant cofirmed that my condition was PMA mainly in my lower limbs and especially on my right hand side. I am now approaching 78 years of age. So far my condition has progressed fairly slowly, having used a walking stick for some time, I now have to use a walker.

    Recently I have been experiencing a dull aching pain in my right hip joint that feels like a toothache and makes me feel quite nauseus at times. At my last telephone appointment with my Consultant in April he was not sure if this was MND related or something else and sugested a scan/ xray when possible. I just wondered if anyone on the forum had experienced anything like this?

    Regards to you all and keep safe in these difficult times.


    Hi Mowbray,

    I am sorry you have hip pain. Life is hard enough with MND so I do hope you get to the bottom of what's causing it.

    I dont know if this is relevant to you but I had really bad hip and back pain when I was struggling to walk and using a rollator. I was offered scans and x rays but my doctors didn't think it was arthritis, despite a family history because I had had the usual MRI scans when I was diagnosed. They felt it was the way I was walking to compensate for leg weakness and foot drop and just suggested pain relief to keep on top of it.

    Now I can no longer walk the pain has gone apart from stiffness sometimes , although I am sure you would rather keep on your feet.

    Best wishes to you and take care,
    Love Debbie


      Sorry you're having hip pain Mowbray.

      As Debbie said, the pain could be caused by a change in your gait, that could have a knock on effect on the joint and the surrounding muscles. It is fairly common to get join pain at some stage due to weakening muscles and many of us take painkillers from time to time to deal with it - presumably your doctor has prescribed you something appropriate?

      But it also could be degeneration or inflammation unrelated to your MND, so hopefully you'll be able to get a scan ASAP. If you didn't mention the pain has associated nausea to the doctor, please do.

      Stay safe.

      Love Ellie.
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


        Hi Debbie,
        Thanks for your advice, at the moment I have been given Ibuprufen gelto try. If that does not work the GP has suggested an MRI Scan / x-ray. We will see what happens. As you say at least I am still on my feet!!.

        Best Wishes,



          Hi Ellie,
          Thank you for your valued comments. As usual you always offer sound advice and support to so many members of this Forum. At the moment I have been prescribed Ibuprofen gel followed by a scan / x-ray if the gel does not have any effect. I was offered painkillers, but I have to admit that I am anti tablets if I can avoid taking them.We will see what transpires in the coming days/weeks.

          Stay safe yourself and thank you so much for your help.

          Love Derek


            Derek, if it's pain caused by weakening muscles, in the meantime you could try making sure your hip is in the correct position and supported when you're sitting down or in bed.

            You can play around with cushions, pillows, massage, hot or cold packs and see if you can improve the pain & discomfort.

            One of my hips turns in slightly so I often put a folded cushion between my thighs when I'm sitting, which helps keep the hip in the right position. I put a pillow under my knees in bed so my legs aren't heavy on my hips and my legs are put in a frog leg type position to stop them turning in. I regularly put a hot wheat pack on my hip too (especially comforting in bed, like my 'blankie' )

            Good luck.

            Love Ellie.
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


              Thank you for starting this thread, the hints and tips I’m going to try, thank you everyone